LYMEPOLICYWONK: IDSA Hearings Delay has Lyme Patients on Tenterhooks

The patients who were not restored to health under the IDSA treatment protocol required additional treatment—treatment which the IDSA protocols prohibit.  Yet when these patients received additional treatment, according to the CALDA survey, they improved significantly.  More than 70% reported feeling much better or somewhat better with respect to fatigue.  Across the board, more than 60% of patients reported feeling much better or somewhat better with respect to headaches, muscle aches, joint pain, neuropathy, and concentration difficulties after receiving additional treatment.  Isn’t the message clear?  When treatment approaches fail, patients need alternatives and medical societies need to ensure that patients are granted treatment options under their guidelines.

You can follow additional comments on Lyme policy at www.lymepolicywonk.org.  You can contact Lorraine Johnson, JD, MBA at lbjohnson@lymedisease.org.