MyLymeData Patient Registry Highlights
MyLymeData is a patient-driven registry and research platform that permits patients to quickly and privately pool their data. Enrolling thousands of patients permits researchers to evaluate care as it is provided in real world practice. It can also facilitate research by generating research hypotheses and recruiting patients for trials. Enroll in MyLymeData today to become a part of the solution.
MyLymeData – Lyme Disease Research
A patient registry built to turn real-world experience into better answers.
This refreshed highlights page brings together key MyLymeData registry numbers, research collaborations, patient-reported symptoms, co-infection findings, and impact metrics from the MyLymeData one-pager.
patients enrolled
data points
peer-reviewed studies
citations in peer-reviewed publications
19,000+ Patients Enrolled
Research Projects & Collaborations
MyLymeData is a research engine that seeks to work with researchers, biorepositories, and clinicians to accelerate the pace of research. We collaborate with researchers at the University of Washington and the University of California at Los Angeles as well as the Lyme Disease Biobank, a project of the Bay Area Lyme Foundation. UCLA’s efforts are supported in part by a National Science Foundation grant.
Most Severe Symptoms Of Persistent Lyme Disease
Co-Infections Are Common In Persistent Lyme Disease
Registry By The Numbers
Percentage of Well & Unwell Patients
Disease Stage of Wel & Unwell Patients
Our Impact
What Types Of Information Can You Find In The MyLymeData Patient Registry?
Diagnosis
Demographics
Quality of Life
Functional Impairment
Treatments
Symptoms
More Well And Substantially Improved Patients Use Antibiotics
Persistent Lyme Disease Patients Have A Lot To Teach Us
