Helpful Lyme disease information links
Websites, Books, Videos and more
www.lymedisease.org –the website of LymeDisease.org gives info about ticks, Lyme disease, co-infections, prevention, risk maps, downloadable brochures, blogs, news and events.
In addition to its website, LymeDisease.org also publishes a quarterly journal, The Lyme Times, distributed free to members. (Click here to join.) We post Lyme-related news on Facebook and Twitter and maintain a network of state-based online support groups. Sign up for our free email newsletters.
Dr. Burrascano’s Lyme treatment guidelines. Print out this 37-page document and highlight the parts that pertain to you. Take a copy to your doctor.
ILADS–International Lyme and Associated Diseases Society. Professional organization for doctors who treat Lyme disease. Lots of information about Lyme, including videos of educational presentations about Lyme-related topics and downloadable brochures.
LDA–Lyme Disease Association. Lyme information, doctor referral site, annual Lyme scientific conference.
Children’s Lyme Disease Network–Info about Lyme and PANS/PANDAS.
How to protect yourself from ticks
Neurological manifestations of Lyme.
Gastrointestinal manifestations of Lyme.
Psychiatric manifestations of Lyme.
Public Health Alert–monthly newspaper on Lyme and other health-related issues. Read it free online.
Recommended books, articles and films:
Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic disease, by Dr. Richard Horowitz.
The Beginner’s Guide to Lyme Disease, by Nicola McFadzean, ND.
The Lyme Disease Solution, by Dr. Kenneth Singleton
The Lyme Diet, by Dr. Nicola McFadzean. What to eat while healing from Lyme.
Cure Unknown: Inside the Lyme Epidemic, by Pamela Weintraub. Excellent explanation of the scientific, medical and political turmoil surrounding Lyme disease.
When Your Child Has Lyme Disease: A Parent’s Survival Guide. by Sandra Berenbaum and Dorothy Kupcha Leland. Guidance on many challenges confronting a family with Lyme disease.
Poughkeepsie Journal’s investigative series about Lyme disease. Highly recommended.
Watch “Real Housewife” Yolanda Foster‘s 11-minute speech about Lyme disease. A stirring tribute to the struggle of Lyme patients everywhere.
Under Our Skin, award-winning Lyme documentary film. Available for free viewing at Hulu.com.
Educational DVDs available to members of LymeDisease.org:
- Putting Lyme Behind You, by Dr. Joseph Burrascano
- Using Integrative Medicine to Heal from Lyme Disease, by Dr. Ann Corson & Dr. Christine Green
- It’s So Much More Than Lyme Disease, by Dr. Richard Horowitz
- Review of Lyme Disease Diagnosis and Treatment, by Dr. Raphael Stricker
- For more information, see our membership page
Financial assistance:
LymeTAP.com–Lyme Testing Access Program. Financial assistance for Lyme diagnostic testing. (US residents only.)
LymeSAVERS.com–Financial assistance for Canadians with Lyme disease.
Info about how to save money on medical lab tests.
Needymeds.com–Financial assistance for obtaining medication.
Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.
LymeAid4Kids–Financial assistance for Lyme treatment for those under age 21.
Free online book, Infusing for Lymies, lots of information about PICC lines and IV drugs.
Filing for disability benefits when you have Lyme.
Financial assistance not related to Lyme disease:
Benefits.gov–State-by-state listing of benefit programs such as food stamps, energy assistance, Medicaid, etc.
Are you eligible for food stamps (SNAP–Supplemental Nutrition Assistance Program)
Getting by on a limited budget–survival guide put together by LymeUnderground website.
Outside of the United States:
Canadian Lyme Disease Foundation
Lyme Disease Action (UK)
Lyme Disease Association of Australia
Karl McManus Foundation (Australia)
AussieLyme (online support group)
Association Luxembourgeoise Borréliose de Lyme (Luxembourg)
.
TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s VP for Education and Outreach. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.
