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Healthcare Policy Resources CENTER
Lyme Disease Healthcare Policy Resources
Resource Library
The following is a selected list of Lyme disease healthcare policy resources from from speeches, publications, and other documents by LymeDisease.org.
Two-Tiered Lab Tests Miss More than 50% of the Cases of Lyme disease
Two-tiered lab tests are no better than a coin toss. Dr. Stricker and Lorraine Johnson published an article that contains a table listing the results of different studies regarding lab sensitivity, Lyme disease diagnosis and treatment: Lessons from the AIDS epidemic.
Evidence Of Persistence Of Lyme Disease In Humans
Persistence of Lyme disease after antibiotic treatment has been demonstrated in both animals and humans. In 2011, Dr. Stricker and Lorraine Johnson published an article that listed over 25 studies demonstrating persistence in humans after two-to-four weeks of therapy.
The Embers Monkey Trials, Persistence, And The IDSA Guidelines
The Embers study essentially dismantles much of the science that the IDSA relies on in its Lyme disease guidelines. The download compares the assumptions of the IDSA guidelines that the Embers study refutes. This is just one of the many reasons the IDSA guidelines should be revised.
The Lyme Wars: Guidelines, Controversy, And Informed Consent
Lorraine Johnson, JD, MBA wrote this article for the April 2014 issue of the law journal Medical Legal Perspectives, regarding the importance of informed consent in the treatment of Lyme disease when there are two standards of care and the science is uncertain.
LDo Congressional Testimony Submission for Senator Blumenthal Hearing
Disturbing new facts obtained in a Freedom of Information Request filed by Kris Newby, the investigative reporter, reveal that an ad hoc group composed of members of the Infectious Diseases Society of America (IDSA), along with members of the Centers for Disease Control & Prevention (CDC) and the National Institutes of Health (NIH), has been acting in violation of fundamental principles of ethics.
LDo, LDA & TFL Testimony For Congressman Christopher Smith
On September 29th, 2010, Congressman Christopher Smith (NJ) introduced into the Congressional Record a report exposing the gaps in research in Lyme disease. The Congressional Record report emphasizes that patients with Lyme disease need a research agenda that reflects outcomes that matter to patients, namely effective diagnostic tools and effective treatments that restore them to health.
