TOUCHED BY LYME: Ora, the girl with the mystery illness

Nowhere Men is a Facebook Page run by three guys who say “everybody has a story to tell.”
They have traveled from the US to many different countries, making videos “about real people around the world so we can all understand each other a little bit better.”
Now back the US, they’ve been spending time in New York City. Recently, they held up a sign in a public place saying, “Tell Us Your Story.”
And that’s how Ora found them. Ora is a young woman who has struggled with Lyme disease for several years. As is the case for many folks with Lyme, it took her a long time to get properly diagnosed and treated.
When she spotted the guys making videos, she leapt at the chance to inform other people who are in the same boat.
Ora told me she wanted to make this video because “I feel that spreading awareness can help others who are struggling with a similar battle of mysterious symptoms without a diagnosis.”
Click below to hear Ora’s message.
https://www.facebook.com/nowheremenadventures/videos/1487986634601193/
The Nowhere Men are three world travelers who share video stories about everyday people. They believe that solving the world’s biggest problems begins by connecting us all through the power of empathy and understanding. Check out their website here.
TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s VP for Education and Outreach. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org .

Dorothy Leland
Dorothy Leland is a longtime advocate and researcher focused on Lyme disease education, policy awareness, and patient support. She has contributed to numerous publications and works closely with medical professionals and organizations to improve understanding and treatment of tick-borne diseases.
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