MyLymeData Resources
MYLYMEDATA – LYME DISEASE RESEARCH
MyLymeData is a patient-powered Lyme disease research project. It was conceived by patients, is run by patients, and addresses the issues that patients care about. It lets Lyme disease patients learn from each other and provides data that can help drive Lyme disease research to improve their lives.
Top Ten Lyme Disease Research Questions
The research questions patients need answered.
These questions replace the old Top Five section and give the page a clearer, more current focus on patient-centered Lyme disease research.
What direct diagnostic test would be both highly sensitive and specific for Lyme disease and co-infections?
What is the most effective treatment protocol to restore health to patients with Lyme disease?
What is the impact of delayed diagnosis on the course of Lyme disease?
What natural therapies and protocols are most effective?
What other diseases (e.g. MS, Parkinson’s) may be caused by Lyme disease?
What are the most effective methods for rehabilitating the brain in neurologic Lyme disease?
Why do some people develop chronic Lyme disease after antibiotic treatment?
What triggers reactivate chronic / late stage Lyme disease or co-infections after remission?
How do co-infections affect the immune response and course of illness in patients with Lyme disease?
Are treatment regimens tailored for specific symptoms more effective? (e.g. neurologic)
Explore Resources
Explore MyLymeData research themes.
Diagnosis & Testing
Resources focused on better direct diagnostic testing, diagnostic delays, and the need for sensitive and specific answers for Lyme disease and co-infections.
Treatment & Recovery
Explore questions about which prescription, alternative, natural, and symptom-tailored treatment approaches may help patients restore health.
Chronic Lyme & Reactivation
Understand why some people develop chronic Lyme disease after antibiotic treatment, and what may trigger symptoms after remission.
Co-infections & Immune Response
Learn how co-infections may affect the immune response and shape the course of illness in patients with Lyme disease.
Neurologic Lyme & Brain Recovery
Research questions include neurologic Lyme disease, brain rehabilitation, and whether symptom-specific treatment regimens are more effective.
Related Diseases & Patterns
Explore big-data questions about whether Lyme disease may be associated with other diseases and long-term patient outcomes.
