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Donate To LymeDisease.org
Your tax deductible donation makes it possible for LymeDisease.org to advocate for change, raise awareness and fund research that can improve patients’ lives.
How your support makes a difference
Strengthening the voice and future of Lyme patients
We work to make the patient voice stronger, to support patient‑centered research, to drive legislative change, and to create a future where Lyme patients can receive the treatment they need to get well.
Patient-powered research
Driving change through patient‑centered research and advocacy
MyLymeData is a patient‑driven registry and research platform where people with Lyme and other tick‑borne diseases can privately and securely enter their personal experiences, symptoms, treatments, and outcomes. With more than 20,000 participants, MyLymeData gives researchers a real‑world view of how care is delivered in everyday clinical practice. It also helps generate new research questions and supports patient recruitment for studies and trials.
MyLymeData works with scientists, biorepositories, and treating physicians to accelerate the pace of Lyme research. Current collaborations include the University of Washington, the University of California, Los Angeles, and the Lyme Disease Biobank, a project of the Bay Area Lyme Foundation. MyLymeData has also been included in two National Science Foundation awards.
20,000+
MyLymeData participants
2 National Science Foundation awards
Collaborating with researchers, clinicians, and biorepositories to accelerate discovery.
Information. Connection. Community.
Helping patients, families, clinicians, and researchers stay informed and connected.
Trusted information
Keeping the Lyme Community Informed
LymeDisease.org provides trusted, up‑to‑date information, news, and healthcare policy analysis related to tick‑borne diseases. We operate the largest communications network focused on Lyme disease, reaching patients, families, clinicians, and researchers nationwide. Through our website, blogs, weekly newsletter, and social media platforms, we keep the community informed with clear, timely, and actionable updates.
Members of LymeDisease.org receive exclusive access to online issues of The Lyme Times, a digital publication covering Lyme and other tick‑borne infections. Members can also explore a comprehensive resource library that includes insurance and disability guidance, treatment‑related materials, healthcare policy information, and links to helpful organizations, support groups, and publications.
We also maintain an online support group, connecting Lyme patients from throughout the United States.
The patient voice
Changing Healthcare Policy through Grassroots Advocacy
LymeDisease.org amplifies the patient voice in legislation, research, and science‑based advocacy. We also empower patients to speak up for themselves — showing them how to contact elected officials, submit public comments, and understand how federal decisions can shape their access to care.
Over the years, our grassroots network has shown just how powerful the Lyme community can be when everyone pulls together. When urgent issues pop up, patients respond — quickly, clearly, and in huge numbers. That kind of coordinated action makes a real difference, and it’s one of the strongest tools we have.
Progress in Lyme disease doesn’t happen in a vacuum. It takes patients, families, clinicians, researchers — and a community that knows how to make its voice heard. LymeDisease.org is committed to keeping that voice loud, clear, and informed, and to giving people the tools they need to advocate for better care.
Advocacy becomes stronger when patients act together.
LymeDisease.org helps keep that voice informed, organized, and heard.
Practical support
Tools to help patients
Our goal is to provide the latest information and tools to help patients with Lyme disease.
Symptom Checklist
Our Symptom Checklist asks patients about exposure and symptoms to help determine their risk of having Lyme disease. It can be easily printed out to share with healthcare providers to inform diagnosis.
Physician Referral Program
We also provide an online physician referral program that helps people suffering from Lyme disease locate a health care provider in their area who is well-versed in tick-borne disease.
It’s time for a change
Stand with us. Be part of a community that cares.
Your support helps strengthen the patient voice, advance research, keep the community informed, and give patients practical tools to seek better care.