A mother’s story: the nightmare in the leaf pile

When many people see a big, beautiful pile of colorful autumn leaves, it feels like an open invitation to dive in. The scene evokes joy, nostalgia, and the simple thrill of childhood.

But for Isabel Rose, it brings up something very different. It reminds her of a moment that marked the beginning of her lifelong struggle with Lyme disease.

What others see as innocent fun, she now views with alarm.

Ticks thrive in damp, shaded environments close to the ground. Leaf piles, tall grass, and wooded edges are prime habitats for them. Children playing in these areas are at increased risk, often unaware that a single tick bite can lead to years of misery.

For Isabel, what began as a carefree childhood leap into a leaf pile became the start of a medical nightmare.

Isabel is now a writer, Lyme disease advocate, and founder of Mothers Against Lyme, a support network for families affected by congenital and pediatric Lyme. She also serves on the board of Project Lyme, a national nonprofit.

In a recent essay published on her Substack, Isabel shares the story of how a tick bite at age 8 led to decades of misdiagnosed symptoms, chronic illness, and eventually, the discovery that both she and her children had Lyme disease and co-infections.

Her experience is a powerful reminder of the importance of tick awareness. Ignoring the risks can be hazardous to yourself–and future generations.

Click here to read her raw and deeply informative essay.

Click here to learn more about Mothers Against Lyme.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, President of LymeDisease.org. She is co-author of Finding Resilience: A Teen’s Journey Through Lyme Disease and of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.