Lyme Blog Posts
Why compounding pharmacies matter and why you should care
By Crystal A. Frost, PhD Compounding pharmacies in California are under a slow-motion attack, and the consequences for patients could be devastating. Sign the petition…
Kris Kristofferson’s shocking tale of Lyme-induced Alzheimer’s
By Dana Parish In 2016, I was floored by Rolling Stone’s cover story on Kris Kristofferson’s Lyme-induced Alzheimer’s. Having almost died from heart failure after…
A “Doolally of Doctors” and the madness behind the misdiagnosis of Lyme disease
By Richard Wilson Are you familiar with the phrase a Doolally of Doctors? It’s a medical version of the Madness of Crowds, which is when…
PODCAST: Catching up with Lyme advocate Olivia Goodreau
By Fred Diamond When I was writing my book “Love, Hope, Lyme: What Family Members, Partners, and Friends Who Love a Chronic Lyme Survivor Need…
Why patients fight to protect access to B12 shots as methylcobalamin
By Crystal A. Frost, PhD On November 6-7, the California Board of Pharmacy (BOP) is expected to vote to restrict access to safe and critical…
Answers to some–not all–of our questions about upcoming Lyme vaccine
In March 2024, I was one of seven Lyme disease advocates invited to attend the “Lyme Disease Vaccine—Technical Consultation” at the CDC in Atlanta. Our…
Remembering Pat Smith, staunch veteran of the “Lyme wars”
By Phyllis Mervine I was on Zoom a few weeks ago at the Celebration of Life service for Pat Smith, longtime president of the Lyme…
$20.7 million to investigate causes of chronic Lyme disease
By Lisa LaPoint, Tufts University Tufts University researchers have received a $20.7 million grant from the National Institutes of Health (NIH) to try to answer…
How Lyme can derail your life–and what it takes to get it back
“One Tick Stopped the Clock” powerfully illustrates how Lyme disease can derail your life, as well as the herculean effort it takes to get back…
When Lyme patients must fight to be believed by doctors
By Nancy Dougherty Illness invalidation by medical professionals—sometimes called “gaslighting”—is an underappreciated and understudied problem in Lyme disease. Many Lyme disease patients complain not only…
Future of IV glutathione and B-12 shots still unsettled in California
California’s Board of Pharmacy (BOP) has been mulling a proposal to restrict access to what are called “category one sterile compounds.” Targeted elements include glutathione,…
Comparing herbal therapy to antibiotics for chronic Lyme disease
By Bill Rawls, MD Nearly 20 years ago, my life was completely disrupted by chronic Lyme disease. After multiple courses of antibiotics made me worse…