Lyme Blog Posts
Timelines–a new way to explain health history to your doctor
By Katie McCurdy As a patient with many mysterious symptoms, I know what it’s like to befuddle my doctors. I had heart palpitations, tingling in…
Our testimony asking Congress to boost Lyme disease funding
LymeDisease.org submitted written testimony last month to Congress, asking for Lyme disease funding to be increased to $202 million. Here’s what we said: Submitted by:…
TOUCHED BY LYME: Working group’s abrupt shift excludes Lyme patients
Last week, on June 4, my eyes were glued to my computer screen. The occasion? The first meeting of the newly reconstituted federal Tick-Borne Disease…
TBD Working Group: Please pay attention to these concerns
The following message was sent to the Tick-Borne Disease Working Group after its June 4 meeting. by Jeanne Ryan As an individual in recovery from…
Latest Lyme Times looks at Bartonella, mold, and mast cell disorders
Did you know that Bartonella, sometimes a co-infection of Lyme disease, was essentially rediscovered as a result of the AIDS epidemic? Dr. Ed Breitschwerdt, one…
Dr. Stricker helps train doctors in Mexico to treat Lyme disease
San Francisco Lyme specialist Dr. Raphael Stricker (a board member of LymeDisease.org) has recently returned from Hermosillo, Mexico. There, he delivered two talks at the…
Shapiro on TBD Working Group; other controversial choices too
Less than 24 hours before the Tick-Borne Disease Working Group (TBDWG) holds its June 4 meeting, the Department of Health and Human Services (HHS) has…
LYMEPOLICYWONK: Will patients be effectively represented on Working Group?
I submitted the following written comments to the Tick-Borne Disease Working Group, in advance of its June 4 meeting. If patient interests are not sufficiently…
TOUCHED BY LYME: Working Group weirdness. What gives?
Things are getting weird with the Tick-Borne Disease Working Group, which is scheduled to meet June 4 in Washington DC. As you’ll recall, the first…
Study finds mixed bacterial biofilms in Morgellons specimens
A new study entitled “Mixed Borrelia burgdorferi and Helicobacter pylori Biofilms in Morgellons Disease Dermatological Specimens” revealed that mixed bacterial biofilms are present within Morgellons…
If true, Shapiro on TBD Working Group will outrage Lyme community
(Update: Click here to sign our petition to remove Shapiro from the TBDWG.) The Infectious Diseases Society of America (IDSA) has announced on its website…
LYMEPOLICYWONK: Who represents Lyme disease patients? Why it matters.
Since December, the Lyme community has been waiting to learn who will be appointed as new members of the federal Tick-Borne Disease Working Group. You…