Lyme Blog Posts
A mother reflects on six years of caring for a child with Lyme disease
by Rebecca Zelis Six years of Lyme disease treatment is a roller coaster of illness and remission. When my son was first diagnosed his symptoms…
We can dream, can’t we? Top gifts for a PANDAS/PANS/Lyme family
By Lisa Kilion Here’s what families dealing with PANS/PANDAS and Lyme could really use in their stockings this year. In David Letterman fashion, I’ll list…
Seeking long-term disability for Lyme? Planning and preparation can help.
By Jennifer Hess, Esq. Without question, insurance companies have been disproportionately denying disability claims for Lyme disease in recent years. In our law office alone,…
LYMEPOLICYWONK: My presentation to TBD Working Group
On December 11, I was privileged to address the inaugural meeting of the federal Tick-Borne Disease Working Group. This panel, established by the 21st Century…
TOUCHED BY LYME: Books for your own shelf, or for gifting to others
Looking for suggestions of useful Lyme-related books? Here are some I personally recommend. All are available from online sources. Many are in e-book format as…
TOUCHED BY LYME: Decorated female Air Force pilot now “unfit for duty”
The first patient advocate to address Monday’s inaugural meeting of the Tick-Borne Diseases Working Group in Washington really knocked our socks off. Air Force Colonel…
Number one research priority for Lyme disease? Better testing.
Press release: LymeDisease.org releases “Top 10 Lyme Disease Research Questions,” as federal government weighs options in fight against growing epidemic. The nation’s top research priority…
“Conquering Lyme Disease: Science Bridges the Great Divide”
From the website of Columbia University Press: Lyme disease is the most common tick-borne illness in the United States, with more than 300,000 cases diagnosed…
LYME SCI: Please, Santa, a few requests for the Lyme community….
Worlds AIDS Day was a huge milestone for HIV, and a huge testament for what science and medicine can accomplish, when they put their minds…
TOUCHED BY LYME: More about CDC website’s deleted references to IDSA
In a recent blog, I reported on how the CDC Lyme pages have recently scrubbed away any references to the IDSA Lyme guidelines. They didn’t…
HHS says Wormser “has declined the invitation” to serve on Lyme panel
The US Department of Health and Human Services today gave us a statement regarding Dr. Gary Wormser’s position on the federal Tick-Borne Diseases Working Group….
Your voice has been heard–Wormser is off the federal Lyme panel
If you go to the US Department of Health and Human Services website, you’ll see a beautiful thing. Dr. Gary Wormser’s name has been removed…