Lorraine Johnson speech at AAAS about patient-powered research, big data, and finding a cure for Lyme disease
In February, Lorraine Johnson was honored to speak before annual conference of the American Association…
Author | LymeDisease.org
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LYMEPOLICYWONK: Lorraine Johnson speaks about MyLymeData to help find a cure for Lyme disease
In February, the publishers of Science magazine, the American Association for the Advancement of Science…
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LYMEPOLICYWONK: LDo goes to the White House for Precision Medicine Summit
I was honored to be invited to participate in the White House Precision Medicine Initiative…
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LYMEPOLICYWONK: Zika, Ebola, and Lyme—What Do They Have in Common?
I don’t know about you, but I have watched wide-eyed and breathless as the Centers…
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LYMEPOLICYWONK: The White House, citizen science, big data and Lyme disease
I was honored to participate in the White House Citizen Science forum this past week. …
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LYMEPOLICYWONK: ILADS Lyme guidelines on National Clearinghouse!
Lyme treatment guidelines developed by the International Lyme and Associated Diseases Society (ILADS) were…
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LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme
Next week, I will be honored to speak at the Stanford MedX conference on Patient Powered…
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LYMEPOLICYWONK: Growing Number Of Chronic Lyme Patients—Still No Government Action Plan?
Have you ever wondered how many people have chronic Lyme disease? The NIH estimates between…
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LymePolicyWonk: Delayed diagnosis of Lyme disease has devastating effect on patients
According to a nationwide survey by LymeDisease.org, only 7% of chronic Lyme patients are diagnosed and treated within critical thirty-day window essential to cure. More than half wait two years or more for correct diagnosis.
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