TOUCHED BY LYME: "I know what Lyme has done to you and how narrowly you have survived thus far."
Letter to a Lyme patient, written in the style of a famous essay by James Baldwin.
Author | LymeDisease.org
Letter to a Lyme patient, written in the style of a famous essay by James Baldwin.
Last week, guest blogger Toni Bernhard told us what NOT to say. Here are her suggestions for things TO say to those who are sick or in pain.
Boston NPR radio station WBUR included a panel discussion of Lyme disease as part of its week-long series “Living with Lyme.” Guest blogger Jennifer Crystal attended the event, and writes this report.
I was honored to speak at the “What’s NEXT” Lyme forum, hosted by Congressman Chris Gibson at Skidmore College in Saratoga Springs, New York on May 21, 2012. It was a fabulous event and included some terrific presentations. My presentation (which is now posted on our website) highlighted the results of our 2009 survey of over 4,000 patients with chronic Lyme Disease that was published in Health Policy last year. In it, I point out the serious personal and economic consequences of the failed policies of the Infectious Diseases Society of America (IDSA)—policies that have resulted in both an alarming crisis of compassion and an intolerable level of fiscal irresponsibility.
Guest columnist Toni Bernhard, who blogs on the Psychology Today website, says even well-intentioned people may not know how to talk to the chronically ill.
Guest blogger Jennifer Crystal ponders how to make tick-borne diseases easier to pronounce and remember.
In 2008, then-Connecticut Attorney General, Richard Blumenthal, criticized the Infectious Disease Society of America (IDSA) guidelines authors for their conflicts-of-interest with vaccines, Lyme test kits and insurance and their failure to disclose these. Since then, their disclosures have been more robust. Apparently, medical journals got that message. Take their disclosure in a recent letter in Lancet by the IDSA gang (link below). Here’s the thing though, most of the conflicts listed involve the IDSA authors testifying against their competitors in medical malpractice testimony and testimony before medical boards. You might recall that when I testified before the IDSA review panel in 2009, the panel seemed shocked when I said that because the IDSA enforced its guidelines, they could hardly be considered voluntary. But if you take a look at the recent disclosures by the IDSA gang, you may wonder that they have time to do anything else, like research, given their aggressive interest in driving out competitive viewpoints. In fact, 6 of the 10 authors of the Lancet letter have testified against competitors. It makes you think these scientists have an anti-competitive ax to grind. It also makes you wonder why Lancet fails to see when scientists have lost the key to the kingdom of science–impartiality.
A minister’s experience gives rise to a new Lyme support group in Kentucky.
This microbiology website is holding an on-line photo contest for microorganisms. Your vote for the borrelia biofilm could help raise Lyme awareness in the international community of research scientists.
(Guest blog) A mom writes in free verse about her daughter’s challenges with Lyme and schooling.
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