LymeSci Blog
Lonnie Marcum
is a Physical Therapist, with a dual degree in health administration and physical therapy. She has a passion for helping people heal from illness and injury by treating the whole body. She became active in the Lyme community after her daughter was diagnosed with tick-borne diseases in 2013. She now devotes much time to learning about Lyme and related conditions, and sharing that knowledge via social media. In addition, she has served as a member of the HHS Tick-Borne Disease Working Group: Tick Biology, Ecology, Control Subcommittee. Her blog, LymeSci, seeks to help patients understand the science of tick-borne diseases and new developments in research.
TOUCHED BY LYME: IDSA gives its response to flood of Facebook postings
Last week, I contacted the IDSA’s media spokesperson for a reaction to the deluge of postings on the organization’s Facebook page. Here’s her response.
TOUCHED BY LYME: IDSA learns what it means to “go viral” on Facebook
IDSA gets an earful from Lyme patients on the organization’s Facebook page. But will they pay any attention?
LYMEPOLICYWONK: And, the Number Is? 5,200 Responses! IDSA Guidelines and Patient Preference Survey
Let me thank everyone who responded to the Patient Preferences Survey! We have drawn over 5,200 responses, which is just simply fabulous. We will now…
TOUCHED BY LYME: (book review) Thalia "growing stronger" after Lyme
Entertainment superstar Thalia talks about having Lyme disease in her recent memoir “Growing Stronger.”
TOUCHED BY LYME: Her son’s “nightmare of illness” led her to path of helping others heal from Lyme
Ann Corson, MD, one of the speakers at LymeDisease.org’s Jan. 22 Lyme patient conference in San Francisco, knows what the parents of her young Lyme…
LYMEPOLICYWONK: Speak Up Now! IDSA Lyme Guidelines And Patient Viewpoints Survey Ends January 1. . .
Since we launched this survey in early October, we have drawn over 4,800 responses. The survey will end on January 1 so I encourage those…
TOUCHED BY LYME: "Night before Lyme Christmas"
A holiday poem by Bob Morgenstern
LYMEPOLICYWONK: SIGN THE PETITION TO REMOVE THE IDSA GUIDELINES FROM THE NGC!
Medical treatment guidelines are tremendously important in determining your treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC), which is…
LYMEPOLICYWONK: CBS Lyme Story, A Tale of Conflicts of Interest & Bias
A CBS news story on Lyme disease has patients concerned about the misinformation that it promotes. On top of that, the story does not have…
TOUCHED BY LYME: Those ticks on Tilden Park’s picnic tables
Researchers looking for nymphal ticks at this prominent northern California destination found them in unexpected places, including on and underneath wooden picnic tables and benches.
TOUCHED BY LYME: Working to get Lyme disease off the "most censored" list
When Lyme patient/advocate Liz Karkoff, of Tarrytown, NY, recently read that Lyme is one of the “Top 25” most censored news stories of 2011, she…
TOUCHED BY LYME: "Project Censored" lists Lyme disease epidemic as one of 2011's most under-reported stories
Every year, “Project Censored,” a news-monitoring research program affiliated with Sonoma State University in California, produces a Top-25 list of underreported news stories. These are…