Lyme Blog Posts
HARDSCIENCEONLYME: Horse Treated for Lyme Improves, Relapses, then Dies
A 12-year-old thoroughbred was examined because of signs of depression, neck stiffness, and poor performance and a reluctance to raise its neck and head above…
LYMEPOLICYWONK: Study Shows Public Believes that Lyme Infection Persists and Longer Term Treatments Are Needed
Drs. Macauda and colleagues (including Peter Krause) conducted a survey of residents in the New England area and found: “The majority of our survey respondents…
LYMEPOLICYWONK: AIDS Advocacy–A Model for Change
This is a terrific resource that explains what made the AIDS patient advocacy movement successful. It's is available for free. Here's an excerpt:…
HARD SCIENCE ON LYME: Bartonella And Inflammation of the Eye
A new study, "Bartonella and intraocular inflammation: a series of cases and review of literature looks at inflammation of the eye caused by bartonella", by…
LYMEPOLICYWONK: Yes, Virginia, there is a Santa Claus: Virginia Lyme Task Force Findings Released
There is a lot to like about the Virginia Governor’s Task Force on Lyme Disease findings, which were unanimously adopted on June 30th after a…
TOUCHED BY LYME: Here’s my tweet to the president. What’s yours?
President Barack Obama is holding a Twitter Town Hall on Wednesday, July 6, at 2 pm eastern time.
TOUCHED BY LYME: Letters to the editor are a simple way to make a point
Writing a succinct letter to your local newspaper can be a good way to get started with Lyme activism. Here are a few other suggestions.
LYMEPOLICYWONK: Lyme Healthcare Access and Burden of Illness Survey Results Published!
In 2009 prior to the IDSA hearing, CALDA wanted patient voices to be heard and conducted a survey that drew over 4,000 responses. It ended…
TOUCHED BY LYME: Answering the question “What can I do to help?”
When you and/or members of your family are chronically ill, there may be friends and family members willing to help out. But responding to and…
TOUCHED BY LYME: (guest blog) How to ask for help when you’re sick
Toni Bernard, JD, the author of the award-winning book, “How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and their Caregivers,” blogs about…
TOUCHED BY LYME: Maneuvering the medical maze
I often tell new Lyme patients that two of the most important tools for fighting this disease are a three-ring binder and a hole punch…
TOUCHED BY LYME: When pain is simply unbearable
As a kid growing up in southern California in the 80s and 90s, Bryan Bower was a bit of a daredevil: BMX biking, rollerblading, skateboarding,…