Lyme Blog Posts
NEWS: What Pamela Weintraub told the IOM panel
Pamela Weintraub's stirring speech at the Institute of Medicine's state-of-the-science Lyme workshop on October 11 brought a standing ovation from the audience, and spirited discussion…
LYMEPOLICYWONK: Research Gaps Report by Lyme Groups Who Pulled Out of IOM Process Entered into Congressional Record
On September 29th, Congressman Christopher Smith (NJ) introduced into the Congressional Record a report exposing the gaps in research in Lyme disease. The report…
TOUCHED BY LYME: Former "Sopranos" actress to speak at Los Angeles Lymewalk
Lyme disease almost wiped out Tracey Silver's acting career before it really got started. However, after three tough years of treatment, she improved enough to…
LYMEPOLICYWONK: Is The IOM Workshop Really an IDSA Workshop in Disguise?
I have gotten some thoughtful comments on my blog posts about the Institute of Medicine’s upcoming Lyme “state of the science” workshop. I want…
TOUCHED BY LYME: Letter to Colby’s Grandpa tells greater Lyme story
Readers of this column recently learned about Colby Lenz, a remarkable San Francisco woman experiencing both severe neurological Lyme disease and a brain condition called…
TOUCHED BY LYME: After a 62-mile bike ride for Lyme research, she’ll be at SF Lymewalk Sept. 26
For over 10 years, Carol E. was too fatigued to ride a bicycle at all. Now, after Lyme treatment, she’s cycling—and walking—to increase public awareness,…
TOUCHED BY LYME: How the IOM is connected to the 2010 CALDA Lymewalks
I leave it to my blogging colleague, the Lyme Policy Wonk, to explain the disturbing details surrounding the Institute of Medicine's upcoming Lyme workshop. But…
LYMEPOLICYWONK: IOM Workshop–Who are They, What is It, When, Where, and Why Does it Matter?
Some of you have been following the IOM proceedings and know the background of the workshop. But I thought I would provide some background…
LYMEPOLICYWONK: IOM Workshop—Where Do I Draw the Line on Fairness?
I thought I might share with the community why I believe the IOM process is too one sided to further patient interests. I am…
LYMEPOLICYWONK: Lyme Patient Groups Withdraw from IOM Lyme Workshop
TFL, LDA, and CALDA, announced today that they are withdrawing from the IOM Lyme Workshop due to bias and the lack of balance in scientific…
LYMEPOLICYWONK: Speaking Truth to Power: Dr. Liegner Lays it Out for the IOM
Dr. Liegner has been in the trenches a long time treating Lyme disease. He was working side by side in the early days with…
TOUCHED BY LYME: Los Angeles Lymewalk is rallying point for “Team Ashlyn Levin”
Ashlyn Levin turns 20 this week, hospitalized since suffering cardiac arrest in July. It’s the latest chapter in a harrowing Lyme journey that started more…