Lyme Blog Posts
TOUCHED BY LYME: A whole ’nother ballgame
In the chaotic early days of my daughter’s illness, when we trying to make sense of her bizarre symptoms and the equally bizarre reactions we…
Lyme Organizations: New IDSA Guidelines Panel, Unbalanced & Biased Congressman and Patient Groups Voice Concerns
Greenwich, CT, January 28, 2009-Patient groups voiced concern and disappointment about the new Infectious Diseases Society of America (IDSA) Lyme disease guidelines’ panel, which excludes…
Medical antitrust actions–Does “might make right”?
Antitrust law is concerned with constraints of trade that foreclose consumer choice. Guidelines developed by medical specialty societies that have monopoly power (like the…
Gooznews takes on conflicts in guidelines
Gooznews posted an interesting commentary on guidelines, conflicts of interest in guideline development and over reliance on expert panels when there are gaps in evidence…
Weinstein Off the IDSA Guidelines Review Panel!
Arthur Weinstein's role on the IDSA's Lyme guidelines review panel was short lived. Today's list of panel members posted on the IDSA website excludes…
TOUCHED BY LYME: A roadmap for Lyme disease
When my family and I needed to quickly come up to speed about Lyme disease several years ago, I looked for a book that would…
The IDSA panel–Q and A
Many people have questions about the IDSA panel, its selection and where we are in the process. This posting I will attempt to answer…
TOUCHED BY LYME: No Lyme in (your zip code here)
Several years ago when my daughter first came down with mysterious disabling symptoms that no doctor could diagnose, my neighbor said, “Sounds like it could…
IDSA Announces New Guidelines Panel–Balanced or Biased?
The IDSA panel list for the Lyme disease guidelines review panel were announced on Monday. The IDSA has a history of stacking its guidelines panels…
Bias and patient autonomy—what’s the connection
Everyone is entitled to their own opinion. So why do we care about bias in medical guidelines? Because opinion should not dictate patient…
Opinion based medicine
For those who haven’t read, the recent New York Times article, "Plenty of Guidelines, but Where's the Evidence?" by D. Sanghavi, M.D., I suggest you…
TOUCHED BY LYME: Like Alice Down the Rabbit Hole
I fell into the alternate reality of Lyme disease four years ago when, seemingly overnight, my teenage daughter became seriously debilitated and none of the…