Lyme Blog Posts
TOUCHED BY LYME: Lasting musical tribute to Neil Spector’s legacy
Dana Parish is a singer, songwriter, and author who, along the way, has also turned into a major advocate for Lyme disease patients. In 2014,…
LYME SCI: Remembering the gifts of Dr. Neil Spector
Dr. Neil Spector, an internationally acclaimed cancer researcher, wanted to change the world. While seeking a cure for cancer, however, he became seriously involved with…
TOUCHED BY LYME: Real-world patient data can help find a cure
I wrote the following article, which appeared in the July 2020 issue of the “Townsend Letter: The Examiner of Alternative Medicine.” MyLymeData is a patient…
Dancing with Lyme disease: Ebb, flow and coming back to life
Elephant Journal, July 15, 2020 By Holly Watts When I was first diagnosed with late-stage (chronic) Lyme disease, my doctor told me that the recovery…
TOUCHED BY LYME: Townsend Letter focuses on Lyme, mold, & COVID
Townsend Letter, the Examiner of Alternative Medicine, is a print magazine that’s been around for 37 years. It focuses on alternative medical treatments and the…
LYME SCI: How many “negative” Lyme tests are due to B. miyamotoi?
Do you have all the symptoms of Lyme disease but test negative? Besides the fact the standard test for Lyme misses half the cases, there…
TOUCHED BY LYME: Working Group cuts public comment in half. Why?
I emailed the following message to the federal Tick-Borne Disease Working Group today. To the TBDWG and staff: As one of the foremost Lyme patient…
Lyme patients need tests, educated doctors, and affordable treatment
Alexandra Moresco delivered the following public comments to the Tick-Borne Disease Working Group on July 8. I’m Ali Moresco, a 27 year old tick-borne illness…
TOUCHED BY LYME: TBD Working Group and FACA’s open meeting rules
In a grand stroke of irony, Wednesday’s online meeting of the Tick-Borne Disease Working Group began with a recitation of the panel’s “core values.” These…
Doctors must learn to recognize TBDs in minority populations
Beth Carrison delivered the following remarks to the Tick-Borne Disease Working Group on July 8. Over the past several months, increased attention is being paid…
Misdiagnosis of Lyme-caused rash can have potentially fatal consequences
Wendy Adams gave the following statement via telephone, during the July 8 meeting of the federal Tick-Borne Disease Working Group. I’m Wendy Adams of Bay…
Bias and group-think contribute to faulty treatment of Lyme disease patients
Dr. Elizabeth Maloney delivered the following remarks to the Tick-Borne Disease Working Group on July 8. Good morning. I am speaking with the support of…