LYMEPOLICYWONK: What Lyme disease treatments are most effective?
Wondering if medical marijuana is effective at controlling the pain associated with Lyme disease? How other patients are treating their fatigue and insomnia? Which treatments have the most side effects?
Watch my presentation from our MyLymeData2018 conference to find out.
With over 11,000 participants enrolled, the MyLymeData project is already giving us the answers to the fundamental questions that sick patients want to know. It collects information about the actual experience of Lyme patients–their symptoms, their treatments, what has helped and what hasn’t. This helps researchers target what’s most important–and helps us all learn from each other.
If you are already a member of MyLymeData, we thank you for your continued partnership. If you have Lyme or have had it at any time in the past, please join and help us communicate to academic researchers, scientists and policy makers. We look forward to continuing this vital research.
Lorraine Johnson, JD, MBA, is the Chief Executive Officer of LymeDisease.org. You can contact her at lbjohnson@lymedisease.org. On Twitter, follow her @lymepolicywonk. If you have not signed up for our patient-centered big data project, MyLymeData, please register now.
Dorothy Leland
Dorothy Leland is a longtime advocate and researcher focused on Lyme disease education, policy awareness, and patient support. She has contributed to numerous publications and works closely with medical professionals and organizations to improve understanding and treatment of tick-borne diseases.
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