Donating Lyme-infected tissue to new Lyme BioBank, possible connection between Gulf War Syndrome and Bartonella, and a deep dive into mast cell activation syndrome were discussed on the second day of the 2018 conference of the International Lyme and Associated Diseases Society.
Scroll down to see how LymeDisease.org’s Lonnie Marcum live-tweeted Saturday’s presentations.
Dorothy Leland is a longtime advocate and researcher focused on Lyme disease education, policy awareness, and patient support. She has contributed to numerous publications and works closely with medical professionals and organizations to improve understanding and treatment of tick-borne diseases.
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Dr. Stricker and I published a letter to the editor on Lyme vaccines in Lancet. The letter responds to an article by employees of Baxter, which has a vaccine in development. The article by Baxter employees in support of a new vaccine was published with an editorial by Dr. Lantos, the new Lyme spokesman for the IDSA. Both the Baxter article and the Lantos editorial make short shrift of patient vaccine safety concerns, which Lantos describes as “largely unsubstantiated”. Dr. Stricker and I note that the first vaccines sparked a class action lawsuit from patients harmed by the vaccines. In the end, of course, the vaccine was pulled by the manufacturer. We note that “by withdrawing LYMErix when it did, the manufacturer avoided releasing phase 4 post-marketing data that probably would have shown increased side-effects related to the vaccine. The data have never been disclosed.” We conclude that given this sketchy past, any new vaccine will need to be forthright about safety issues. The dismissive attitude toward patient safety reflected in the Baxter article and the Lantos editorial serve only to increase patient distrust. Because vaccinations are given to a healthy population, our first priority is to make sure they are safe. Our letter to the editor is available open access for readers.
