At the upcoming San Francisco protest of the IDSA Lyme guidelines, we will provide some pre-printed signs for protesters to use if they’d like. However, I’d really like to encourage those who can (and want to) to bring a personal sign with a message of their own choosing.
As inspiration, here are some signs from past events I’ve gathered from Facebook. They range from humorous, to poignant, to matter-of-fact.
What is YOUR message?
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Kris Newby, senior producer of the awarding-winning Lyme disease documentary, recently addressed the Institute of Medicine's listening session for "The State of the Science" of Lyme and other tick-borne infections. She observed that Lyme research has been tightly controlled by the same lead IDSA Lyme guidelines authors for the last 20 years–while we still have no reliable testing and no effective treatments for patients who fail the IDSA protocols.
An otherwise well-written news report about Lyme disease hits a snag.
Children with Lyme disease experience many different kinds of pain, which don’t always fit neatly into categories on a medical chart.
Last week, I contacted the IDSA’s media spokesperson for a reaction to the deluge of postings on the organization’s Facebook page. Here’s her response.
Fifty-five (55) is a remarkable number. Did you know it’s the sum of the numbers 1-10? 55 is the speed limit in some places. And it’s the international direct dial telephone code for Brazil.
Here’s something else about 55. According to California health officials, it’s how many new cases of Lyme disease the state saw in 2009. (When I learned this at today’s Lyme Disease Advisory Committee (LDAC) teleconference, I hit the mute button on my phone and started screaming. ARRRRRGHHHHH! I actually haven’t stopped. Can you hear it?)
Two Canadian mothers with Lyme disease–nurse Sue Faber and attorney Jennifer Kravis–started a website called…
