Lyme Blog Posts
LYMEPOLICYWONK: IDSA guidelines: A cautionary tale about development of clinical practice guidelines
Dr. Stricker and I have published a new peer-reviewed article on the flawed IDSA Lyme guidelines development process, the antitrust investigation, and the lack of…
LYMEPOLICYWONK: Health Consumers Skeptical About Evidence Based Guidelines
A new article in Health Affairs, Evidence that Consumers are Skeptical About Evidence Based Health Care, draws an important conclusion: “Clearly, consumers will…
LYMEPOLICYWONK: Odd Couples—CDC, NIH, IDSA, others? “Hey, what are you yelling about? We’re playing a friendly game!”
The IDSA recently reaffirmed its beleaguered Lyme guidelines with a panel it selected of IDSA members. (Aren’t we all surprised?) Turns out the…
LYMEPOLICYWONK: Spin, spun and hung out to dry. Lyme, science and the truth barrier
We know spin when we hear it. Politicians like Bush (but not him alone) and talking points taken to the extreme. This is…
LYMEPOLICYWONK: IDSA explains why “evidence” is not necessary for “evidence-based guidelines”
I suppose it was inevitable. The IDSA, due to inattention (hey, it happens with age), lack of oversight, control, or, shall we say, “iron…
TOUCHED BY LYME: More comment about school disallowing Lyme teen's photo in yearbook
A Pennsylvania school district is making life even more difficult for a light-sensitive Lyme patient. Family therapist Sandy Berenbaum, who specializes in helping Lyme families…
TOUCHED BY LYME: Pennsylvania school district won’t let light-sensitive Lyme patient have specially made picture in the yearbook
Any light brighter than a cell phone's glow causes seizures for this teenager with Lyme disease. Yet she wants a graduation photo in the school…
TOUCHED BY LYME: Homeschooling with chronic illness
What to do about schooling is one of the most frustrating challenges facing families of children with Lyme disease.
TOUCHED BY LYME: Like the "Kevin Bacon Game"–making Connecticut connections for Lyme patients
Even if you don’t live in Connecticut and don’t know anybody in Connecticut, you probably know somebody who DOES know somebody in Connecticut. We need…
Nutritional strategies for healing from Lyme disease
(Book review) Improving diet may be one of the most important steps a Lyme patient can take on the road back to health.
LYMEPOLICYWONK: IDSA PETITION –CT RESIDENTS URGED TO SIGN, DISTRIBUTE AND DELIVER!
Connecticut residents are urged to sign the petition to hold the IDSA legally accountable for violating the antitrust Settlement Agreement with the CT AG. …
Latest issue of Lyme Times
…………. Lyme Times Latest issue includes articles on: The IDSA Lyme guidelines controversy Lyme advocacy on both state and national levelsWorld-wide incidence of Lyme…