Lyme Blog Posts
Patient story: Lyme disease deserves more than “mediocre attention”
By Casey Fillian Thirty-seven years ago, I went to summer camp in a heavily wooded area of New Jersey. I started coming down with odd…
TOUCHED BY LYME: Horowitz responds to the “old persistence debate”
As noted in my most recent blog about the Tick-Borne Disease Working Group, a major sticking point has once more emerged between patient-aligned panelists and…
TOUCHED BY LYME: Highs and lows at TBD Working Group meetings
The federal Tick-Borne Disease Working Group’s recent online meetings gave reasons for Lyme advocates to be both optimistic and pessimistic about the panel’s activities in…
The Lyme Times: How Lyme disease can affect the brain
Topics covered in latest issue of the Lyme Times include: Lyme disease and your brain Head trauma and Lyme …
No Lyme in Mississippi? Wrong! Plus co-infections and alpha-gal too.
Cortney McCord delivered the following public comment at the Feb.28 meeting of the federal Tick-Borne Disease Working Group. My name is Cortney McCord. I’m a…
Have we heard from a doctor yet? Is someone going to be able to help me?
Jody Hudson delivered the following remarks as public comment to the federal Tick-Borne Disease Working Group on Feb.28. Have we heard from a doctor yet?…
Center for Lyme Action offers recommendations to TBD Working Group
Bonnie Crater gave the following public comment at the February 28 meeting of the federal Tick-Borne Disease Working Group. I’m Bonnie Crater from Portola Valley,…
Being shot at in combat not as bad as mistreatment for Lyme disease
Col. Nicole Malachowski delivered the following public comment to the February 28, 2022, meeting of the federal Tick-borne Disease Working Group. I’m Colonel Nicole Malachowski,…
TOUCHED BY LYME: Advocates from 45 states seek more Lyme funding
More than 300 Lyme advocates from throughout the US took part in this week’s Virtual Lyme Fly-in. It was a chance for individuals to educate…
TOUCHED BY LYME: “My Promise to Alex” –a memoir and a call to arms
Alex Hudson grew up in Fresno, California. When she was 11 years old, she started complaining that her legs hurt. That was the beginning of…
TOUCHED BY LYME: When parents are unjustly accused of harming their sick child
If your child has chronic Lyme disease, PANS/PANDAS, mast cell activation syndrome, POTS, or any number of other “medically complex conditions” – you have probably…
LYME SCI: Do long COVID and long Lyme both activate mast cells?
Two new studies have shown a correlation between so-called “long COVID” and mast cell activation syndrome (MCAS). This suggests that inexpensive, over-the-counter, mast cell stabilizing…