Author | LymeDisease.org

Dorothy Leland

Dorothy Kupcha Leland is President of LymeDisease.org. A writer and longtime advocate, she focuses on Lyme disease education, policy awareness, and patient support. She is co-author of Finding Resilience: A Teen’s Journey Through Lyme Disease and When Your Child Has Lyme Disease: A Parent’s Survival Guide.

Lyme Policy Wonk

LYMEPOLICYWONK: MyLymeData, powered by patients, helps drive Lyme research
November 3, 2020

I want to thank Mimi MacLean for featuring me on Lyme 360’s Heal podcast. Mimi…

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Touched by Lyme

TOUCHED BY LYME: Shapiro and Walker tried having it both ways. It didn’t work.
October 30, 2020

The Tick-Borne Disease Working Group is supposed to bring together 14 people—scientists, doctors, health officials,…

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Touched by Lyme

TOUCHED BY LYME: What’s true Lyme patient representation?
October 27, 2020

I delivered the following public comments by phone to the federal Tick-Borne Disease Working Group…

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Touched by Lyme

TOUCHED BY LYME: Why what’s on a death certificate matters so much
October 22, 2020

Carl Hamrin was born in Sweden, emigrated to the United States, and became a US…

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Touched by Lyme

TOUCHED BY LYME: Launching a “moonshot” to cure Lyme by 2030
October 19, 2020

The Center for Lyme Action (CLA), a nonprofit organization dedicated to increasing federal funding for…

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Touched by Lyme

TOUCHED BY LYME: My conversation with “Lyme Time Podcast with Ali”
October 17, 2020

Alicia White suffered from bizarre, often painful physical symptoms for years. Consulting numerous doctors, the…

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Touched by Lyme

TOUCHED BY LYME: Legislative update and a Lyme “moonshot”
October 15, 2020

Bonnie Crater, co-founder of the Center for Lyme Action–a lobbying group seeking more federal funding…

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LymeSci Blog

LYME SCI: 12 ways you can help yourself manage chronic pain
October 8, 2020

Chronic pain–defined as ongoing pain that continues for longer than six months–is a common complaint…

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Touched by Lyme

TOUCHED BY LYME: Resources to get you going in the right direction
September 29, 2020

LymeDisease.org is one of the foremost Lyme patient advocacy organizations in the United States. We…

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Touched by Lyme

TOUCHED BY LYME: Walker & Shapiro fail to change report’s Chapter 7
September 25, 2020

The federal Tick-Borne Disease Working Group held another online meeting Tuesday. Its upcoming Report to…

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