lmartin

This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of groundbreaking research, collaboration, and progress.

We are pleased to present the Clinician Barriers to Providing Care Chartbook summarizing key points from the published study. Download the chartbook to learn more about clinician barriers to providing care to Lyme disease patients and why patients can’t get the care they need.

About a third of Lyme patients participating in MyLymeData’s COVID-19 Vaccine Survey said they have been vaccinated. MyLymeData participants reported slighter lower rates of COVID vaccination side effects than those reported by the general population.

Lorraine Johnson, CEO of LymeDisease.org presentation about what we need to do as a community to accelerate the pace of Lyme disease research and why I believe involving patients as research partners is essential to ensure that research addresses questions that are important to patients.

The Centers for Diseases Control and Prevention recently compared its annual surveillance Lyme numbers [those…

Research Disadvantaged Diseases Create Research Engines Using Patient Registries Chronic Lyme disease is a research…

One of the questions we have sought to answer through our MyLymeData patient registry: Why do some people improve substantially with antibiotic treatment, while others do not? Our recently published peer-reviewed study of over 2,000 participants from MyLymeData begins to answer those questions.

COVID-19 has disrupted life throughout the world for half a year now. In May, MyLymeData launched our COVID-19 Impact Survey to learn how the pandemic is specifically affecting the Lyme community. The survey covers topics like COVID diagnosis of MyLymeData participants or those in their household, the impact on Lyme medical appointments and possible financial burdens.

Earlier this year, MyLymeData kicked off an on-going gender bias study with Dr. Ray Stricker presenting on the topic.  I introduced his talk, focusing on the broader issue of gender bias in research—which has become much more widely recognized generally.