
LymeSci Blog
Lonnie Marcum
is a Physical Therapist, with a dual degree in health administration and physical therapy. She has a passion for helping people heal from illness and injury by treating the whole body. She became active in the Lyme community after her daughter was diagnosed with tick-borne diseases in 2013. She now devotes much time to learning about Lyme and related conditions, and sharing that knowledge via social media. In addition, she has served as a member of the HHS Tick-Borne Disease Working Group: Tick Biology, Ecology, Control Subcommittee. Her blog, LymeSci, seeks to help patients understand the science of tick-borne diseases and new developments in research.
TOUCHED BY LYME: Avoiding a heart transplant by treating Lyme disease
Dr. Steven Phillips is a well-known Lyme specialist and co-author of the book: Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get…
Pioneering Lyme pediatrician Charles Ray Jones dies at age 93
Dr. Charles Ray Jones, a trailblazing pediatric Lyme specialist who has treated more than 15,000 children from around the world for tick-borne diseases, has died….
Lyme Central: What you need to know about ticks, Lyme, and getting well
By Carolyn Degnan If you or any member of your family has Lyme disease–or if you suspect you might have it–or if you’re trying your…
TOUCHED BY LYME: #TickCheckChallenge teaches and inspires
Last year, PA Lyme Resource Network and Invisible International came up with a real winner of a way to encourage kids to do tick checks. In…
A partnership that’s finding answers in Lyme and other tick-borne diseases
By Bay Area Lyme Foundation Many different groups comprise the Lyme disease community including patients, their families, healthcare providers, researchers and nonprofit organizations. These nonprofit…
Summary of April 28 TBD Working Group meeting, in tweets
The federal Tick-Borne Disease Working Group held two days of online meetings, April 27 and 28. Here is how LymeDisease.org’s Lonnie Marcum live-tweeted the second…
The physical and financial devastation of unrecognized Lyme disease
Caroline Ciocca delivered the following public comment to the federal Tick-Borne Disease Working Group on April 27. My name is Caroline and I am 25…
Summary of April 27 TBD Working Group meeting, in tweets
The federal Tick-Borne Disease Working Group held two days of online meetings, April 27 and 28. Lonnie Marcum, of LymeDisease.org, live-tweeted the proceedings. LymeDisease.org CEO…
What you need to know about the new Lyme ICD-11 diagnostic codes
By Kris Newby, Invisible International The World Health Organization (WHO) has added 15 new medical diagnostic codes for Lyme disease, which replaced four older codes…
Things not to say to people with Lyme and other invisible illnesses
By Vicki Novinsky, aka “Miss Diagnoses” How many times have you been asked whether you have tried celery juice? What about kale/coconut oil/turmeric/yoga/colonics/algae/walking barefoot? I…
Lyme Awareness Month issue–excerpts of 12 important Lyme books
In honor of Lyme Disease Awareness Month, the latest issue of the digital Lyme Times is open access–freely available to all. This special issue offers…
Persistent Lyme, long COVID, and patient-led research
Carolyn Degnan delivered the following public comment to the federal Tick-Borne Disease Working Group on April 27, 2022. Good morning. I am the Chief Operating…











