LymeSci Blog
Lonnie Marcum
is a Physical Therapist, with a dual degree in health administration and physical therapy. She has a passion for helping people heal from illness and injury by treating the whole body. She became active in the Lyme community after her daughter was diagnosed with tick-borne diseases in 2013. She now devotes much time to learning about Lyme and related conditions, and sharing that knowledge via social media. In addition, she has served as a member of the HHS Tick-Borne Disease Working Group: Tick Biology, Ecology, Control Subcommittee. Her blog, LymeSci, seeks to help patients understand the science of tick-borne diseases and new developments in research.
Federal TBD Working Group releases 2018 report to Congress
The Tick-Borne Disease Working Group has issued its first report to Congress. The document calls on the federal government to focus more resources on the…
42,743 times 10 equals 427,430 cases of Lyme disease in US
The CDC’s 2017 Lyme disease statistics are in: 42,743 “reported” cases. Using the CDC’s own estimate that Lyme is under-reported by a factor of 10,…
Study strengthens association between Morgellons and tick-borne diseases
Researchers shine light on the link between Borrelia spirochetes and a mysterious skin condition. Morgellons disease is frequently associated with Borrelia burgdorferi (Bb), the agent…
TOUCHED BY LYME: Canadian Lyme lawsuit goes to trial Nov. 26
A Canadian man is suing two doctors and a medical center for failing to appropriately diagnose and treat him for Lyme disease. According to his…
“Chronic Lyme disease” remains a contentious term
I was recently interviewed by Charles Seales of Newsy’s “The Why,” who asked me what I’d say to people who claim chronic Lyme disease is…
LYMEPOLICYWONK: “Chronic Lyme disease” remains a contentious term
“Chronic Lyme disease” is a term that still generates controversy in the medical world. I was recently interviewed by Charles Seales of Newsy’s “The Why,”…
Lyme Disease BioBank Adds Lyme Disease Tissue Collection Program
Bay Area Lyme Foundation, a national organization funding research to make Lyme disease easy to diagnose and simple to cure, announces the addition of the…
The Lyme Times – Fall 2018
The Fall issue of The Lyme Times is now available online to current members of Lymedisease.org. Some of the highlights of this issue include: Lyme…
How I healed from Lyme disease and mast cell activation syndrome
By Savannah Marcum After six long years of being deeply chronically ill — suffering from Lyme disease, a handful of co-infections and mast cell activation…
“Super responders” are key to personalized Lyme disease treatment
Using patient-reported outcome data from 3,900 people enrolled in MyLymeData, we looked at how individual patients vary in their response to treatment. Finding out who…
LYMEPOLICYWONK: “Super responders” are key to personalized Lyme disease treatment
I’m excited to report that the first study using information from MyLymeData has just been published in the medical journal Healthcare. Using patient-reported outcome data…
TOUCHED BY LYME: IDSA admits “shortcomings” in Lyme disease testing
The Lyme community has been saying for years that current “standard” Lyme disease testing leaves too many patients inappropriately undiagnosed. In other words, the tests…