Lyme Blog Posts
Racial disparities in diagnosing and treating Lyme disease
by Melissa Wright, MBA, Director of Patient Engagement & Outreach for LymeDisease.org Racial disparities in healthcare. Health inequity. Social determinants of health. Socioeconomic status. Systemic…
Dr. Jones’s still-relevant advice on children with Lyme disease
Dr. Charles Ray Jones—who recently died at age 93—was a giant in the field of pediatric Lyme disease treatment. He not only helped thousands of…
Lyme Central: What you need to know about ticks, Lyme, and getting well
By Carolyn Degnan If you or any member of your family has Lyme disease–or if you suspect you might have it–or if you’re trying your…
A partnership that’s finding answers in Lyme and other tick-borne diseases
By Bay Area Lyme Foundation Many different groups comprise the Lyme disease community including patients, their families, healthcare providers, researchers and nonprofit organizations. These nonprofit…
The physical and financial devastation of unrecognized Lyme disease
Caroline Ciocca delivered the following public comment to the federal Tick-Borne Disease Working Group on April 27. My name is Caroline and I am 25…
What you need to know about the new Lyme ICD-11 diagnostic codes
By Kris Newby, Invisible International The World Health Organization (WHO) has added 15 new medical diagnostic codes for Lyme disease, which replaced four older codes…
Things not to say to people with Lyme and other invisible illnesses
By Vicki Novinsky, aka “Miss Diagnoses” How many times have you been asked whether you have tried celery juice? What about kale/coconut oil/turmeric/yoga/colonics/algae/walking barefoot? I…
Tulane researcher asks, “Could chronic Lyme contribute to Alzheimer’s dementia?”
By Kris Newby, Invisible International In 2019, the late-great-science-writer Sharon Begley wrote an insightful article, “The maddening saga of how an Alzheimer’s ‘cabal’ thwarted progress…
“Pain scale” often inflicts extra pain on suffering patients
By Meg Huber For six and a half years of my life, I was in the exact same situation nearly weekly—sitting in a doctor’s office…
Treating Bartonella cleared most of my son’s symptoms of autism
By Debbie Kimberg For years, I had no idea that I was infected with Lyme disease and related illnesses. There was nothing obvious, like pain…
What connection between Lyme disease and teen suicide?
By Dr. Rosalie Greenberg As I was looking at a recent edition of the New Jersey Star Ledger, I was struck by a lengthy article…
Screenwriter turns a couple’s courageous Lyme fight into a film script
By Steve Doherty I was bitten on the neck by a tick in 1996, while camping in southern Mississippi. But I didn’t notice or remove…