Lyme Blog Posts
TOUCHED BY LYME: Avril’s album brings blizzard of coverage to Lyme disease
Canadian superstar Avril Lavigne’s new album “Head Above Water,” which includes two songs based on her Lyme disease experience, went on sale today. This follows…
LYMEPOLICYWONK: Why HIPAA privacy rules must not be eroded
When you walk into a doctor’s office these days, you’re handed a sheaf of papers related to something called HIPAA—the Health Insurance Portability and Accountability…
Overcoming Lyme disease, writing a book, going to college
by Brian Benson, Bridgewater State University If you met Patrick Collins as a young teen, you’d be hard-pressed to imagine him jogging around his neighborhood, never mind…
TOUCHED BY LYME: Avril’s “Warrior” to be Lyme community’s anthem?
Superstar Avril Lavigne unveiled an audio snippet of her new song “Warrior” on social media today–and I predict it will be adopted by the Lyme…
TOUCHED BY LYME: Strang’s strange anti-Lyme retweet
What’s the meaning of a retweet, anyway? Retweeting a post on Twitter is akin to sharing an article on Facebook. I think most people interpret…
Lessons I’ve learned in 7 years with Lyme disease
by Anthony Wallace In an all too familiar tale, I was diagnosed with Lyme disease after three years of mysterious symptoms and a lot of…
Why a Lyme and PANDAS mom didn’t answer your email
by Lisa Kilion A recent New York Times opinion piece, Why I Didn’t Answer Your Email, discussed reasons why a parent of neurotypical, healthy children…
TOUCHED BY LYME: 10 years of Lyme progress, one blog at a time
It’s hard to believe that just a decade ago, the online Lyme world looked very different from today. Facebook and Twitter were in their infancy….
LYMEPOLICYWONK: New blog helps interpret MyLymeData
The MyLymeData project has been in operation for more than three years now. With more than 12,000 patients enrolled, it is the largest study of…
My Top 10 Tips for Traveling “Smart” with Lyme disease
Many people must travel for Lyme treatment. Unable to find the help she needed in New England, Kate Bowen of Vermont decided to visit a…
From darkness to light: SIDM tells the Lorraine Johnson story
The Society to Improve Diagnosis in Medicine (SIDM) is a non-profit organization that focuses on the issue of diagnostic error. Misdiagnosis is quite common in Lyme…
TOUCHED BY LYME: Happy update on Lyme spokesperson Landau
San Diego TV newswoman Brooke Landau has been a rock star to the Lyme community for many years now. First, there’s the inspiring example of…