Lyme Blog Posts
What alternative treatments work for Lyme disease? What are their side effects?
We asked participants in MyLymeData who were using natural treatments to tell us whether they were very effective, moderately effective, not effective or whether they…
LYME SCI: Are hidden ingredients in pills making you sicker?
Two years ago, we discovered that my daughter was allergic to microcrystalline cellulose (MCC)–one of the most common fillers in medications and supplements. Just two…
Prevalence of Lyme disease is a big and growing problem — let’s look at the numbers.
For every year that we do not address the problem and find a cure for those who remain ill, the number of people living with…
History of Lyme disease in the US, by Dr. Joseph Burrascano
Dr. Joseph Burrascano, one of the world’s leading experts on the diagnosis and treatment of Lyme disease, is a founding member of the International Lyme…
TOUCHED BY LYME: Lyme spokesperson Landau to undergo heart surgery
Click here for Update #2, Jan, 7, 2019. Update #1: On Dec. 21, I called the TV station to inquire about Brooke’s surgery. The person…
IDSA lists complaints against TBD Working Group; advocates push back
The federal Tick-Borne Disease Working Group issued its 2018 Report to Congress a few weeks ago, and the Infectious Diseases Society of America (IDSA) doesn’t…
LYMEPOLICYWONK: Abandon “Post-Treatment Lyme Disease Syndrome” label
On December 3, I gave oral comments to the federal Tick-borne Disease Working Group. I focused on how use of the term “Post Treatment Lyme…
TOUCHED BY LYME: The healing power of gratitude ornaments
This is the third year I’ve re-published “The Healing Power of Gratitude Ornaments.” This one has been updated slightly from previous years. Guest blog by…
TOUCHED BY LYME: “Not Lyme disease”–or misdiagnosis by geography?
My verbal comments to the federal Tick-Borne Disease Working Group, Dec. 3, 2018. My name is Dorothy Leland and I live in Davis, California. In…
Who gets to decide what constitutes scientific evidence for chronic Lyme?
Verbal Comments to the Tick-borne Diseases Working Group, December 3, 2018 by Phyllis Mervine I’m Phyllis Mervine, Founder and President of the patient advocacy nonprofit…
TBD Working Group’s last 2018 meeting; applications open for next panel
The last meeting of the first phase of the federal Tick-Borne Disease Working Group was held on December 3, 2018. The panel recently submitted its…
Using MyLymeData to Build a Lyme Disease Research Engine
In 2015, we launched MyLymeData, our patient registry and research platform. With over 12,000 patients enrolled, today, it is the largest observational study of Lyme…