Lyme Blog Posts
TOUCHED BY LYME: First-place award for our Lyme book
I was pleased and proud to accept a “First Place–Adult Non-fiction” award from the Northern California Publishers and Authors association at a banquet near Sacramento…
Help! A Tick Bit Me!
By Phyllis Mervine, President of LymeDisease.org In many parts of the country, nymphal ticks are active now. They are the life stage most often associated…
You Can Do It! Put Up Posters for Lyme Disease Awareness Month
May is Lyme Disease Awareness Month and in most parts of the US, ticks are out in force. In the next few months, thousands of…
Patients Please Help Us Pass This Bill!
By Phyllis Mervine, President of LymeDisease.org We want Senator Blumenthal’s bill, S. 1503, Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2015, to…
Sharing “MyLymeData” on your blog or website
MyLymeData—the patient-powered project that allows people to pool their Lyme experiences to help further medical research—needs you to help spread the word. We currently have…
“Crucible of Chronic Lyme” takes on IDSA and CDC dogma
Press release, April 20, 2016: Despite scientific studies, the CDC and IDSA dismiss any existence of chronic Lyme disease. Kenneth B. Liegner, M.D. has compiled…
LYMEPOLICYWONK: Misdiagnosis of Lyme disease as MS –MyLymeData Quick Bytes
This is the first in what I hope will be a series of “quick bytes” (2-minute videos) of some of the preliminary results we are…
MyLymeData Quick Bytes: Lyme misdiagnosed as MS
This is the first in what I hope will be a series of “quick bytes” (2-minute videos) of some of the preliminary results we are…
LYMEPOLICYWONK: Patient representation on the revised IDSA Lyme guideline panel: Is it real or token?
Patient representation on the revised IDSA guideline panel: Is it real or token? The IDSA guideline development process is a big deal—without making sure the…
LYMEPOLICYWONK: IDSA says revision of Lyme disease guidelines expected to take 2-5 Years
Yesterday, IDSA spokesperson Diane Olson informed LymeDisease.org that they hope to complete the new guideline development process within 2-5 years. It takes time to actually…
TOUCHED BY LYME: “Even good girls can get deathly ill”
At age 25, Amie Valpone, an up-until-then-healthy and successful marketing professional, was in a bad way—and nobody knew why. “My legs were swollen, my…
I thought I had lost my daughter forever to Lyme disease
This is one of a series of guest blogs by people who have enrolled in MyLymeData. by Eliza Hemenway I wrote a book about my…