Lyme Blog Posts
Dr. Steven Phillips’ straight talk about Lyme on Fox5 New York
Dr. Steven Phillips, of ILADS, gives much-needed perspective and information about Lyme disease on Fox5NY, April 1, 2016:
TOUCHED BY LYME: Media drinks kool-aid on Lyme study
In an article published this week in the New England Journal of Medicine, European scientists reported on their study of whether giving oral antibiotics after…
LYMEPOLICYWONK: Chronic Lyme European PLEASE Trial—You know it’s spin when treatment “success” is called “failure”?
Today a widely anticipated clinical trial on chronic Lyme disease from Europe called PLEASE was published in the New England Journal of Medicine (NEJM). The…
Julia Bruzzese and the story of her papal blessing
12-year-old Julia Bruzzese of New York, in a wheelchair from Lyme disease, was thrust into the national spotlight in September, when Pope Francis picked her…
TOUCHED BY LYME: Jesse Colin Young says life with Lyme “cuts like a knife”
In 1995, fire erupted at California’s Point Reyes National Seashore, a place of wild beauty about 30 miles north of San Francisco. Fed by hot,…
How 11 top NYC doctors missed my Lyme disease
This is one of a series of guest blogs by people who have enrolled in MyLymeData. by Dana Parish A July 2014 wedding on Long…
Lorraine Johnson speech at AAAS about patient-powered research, big data, and finding a cure for Lyme disease
In February, Lorraine Johnson was honored to speak before annual conference of the American Association for the Advancement of Science– one of the most mainstream…
LYMEPOLICYWONK: Lorraine Johnson speaks about MyLymeData to help find a cure for Lyme disease
In February, the publishers of Science magazine, the American Association for the Advancement of Science (AAAS), held its annual conference– one of the most mainstream…
TOUCHED BY LYME: Girl’s Lyme “dream” goes viral
Lyme disease advocacy can come in all shapes and sizes. In January, a third-grade class in Mankato, Minnesota, learned about Martin Luther King, Jr. and…
TOUCHED BY LYME: A quick introduction to Lyme disease
The following links provide a good overview of different aspects of Lyme disease: www.lymedisease.org LymeDisease.org gives info about ticks, Lyme disease, co-infections, prevention, risk maps,…
LYMEPOLICYWONK: LDo goes to the White House for Precision Medicine Summit
I was honored to be invited to participate in the White House Precision Medicine Initiative Summit last week. There were 200 people packed in the…
I joined MyLymeData because things need to change
This is one of a series of guest blogs by people who have enrolled in MyLymeData. When Rachel Leland was wheelchair-bound (often bed-bound) from…