Why is this message truck circling San Francisco’s Moscone Center?
To draw attention to the Lyme denialists of the Infectious Diseases Society of America, convening this week in SF.
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THE LYME TIMES: New Yorker article fails to ask important questions
In the July 1 issue of The New Yorker, reporter Michael Specter examined “The Lyme Wars.” Shortly after his article was published, NPR’s Terry Gross interviewed Specter on Fresh Air. Despite some accurate reporting, Specter repeated much IDSA standard misinformation as if it were fact, without noting that much of it has been disputed by many scientists. Pamela Cocks, managing editor of The Lyme Times, sent this response to the New Yorker, which chose not to print it. (The only letter the New Yorker published on the subject was from an IDSA-aligned organization.)
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LYMEPOLICYWONK: Pam Weintraub’s CNN Article–Setting Things Straight
CNN published an editorial by Pam Weintraub that helps set the record straight in Lyme disease. I comment about how the Lyme research agenda has been hi-jacked by an insular group of researchers and why we need to include patients and their physicians as stakeholders in Lyme disease. It’s time for research and treatment guidelines that are accountable and that improve patient care.
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TOUCHED BY LYME: Media Coverage Response
Guest blogger Jennifer Crystal responds to recent media coverage in by reporters from the Boston Globe and the New Yorker.
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GUEST BLOG: Lone star tick implicated in Lyme disease in the South
Liz Schmitz, of the Georgia Lyme Disease Association, discusses important new research indicating that yes, folks, there is indeed Lyme disease in the southern US.
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GUEST BLOG: Why medical research should include the patient perspective
Dr. Leana Wen discusses how PCORI–Patient-Centered Outcomes Research Institute–hopes to change how medical research is approached in the US.
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TOUCHED BY LYME: Tick-borne illnesses in Finland
Guest blogger C.M. Rubin interviews two European scientists about the prevalence of Lyme disease and other tick-borne infections in Finland.
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LYMEPOLICYWONK: LDo Lyme Impact and Cost Survey
I want to extend my thanks to the nearly 4,000 people who have already responded to the new LDo survey and urge those who have not responded yet to do so. The survey will close May 5th. To take the survey, go to LymeDisease.org and click the “Take Patient Survey” button.
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NEWS: LymeDisease.org's top advocate named to PCORI panel
Lorraine Johnson will represent patient viewpoint to scientific research funders
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NEWS: Evidence mounts that Morgellons is infectious, not "delusional"
Morgellons, a painful condition which can cause fiber-like growths on the skin, is sometimes associated with Lyme disease.
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