LYMEPOLICYWONK: Who represents Lyme disease patients? Why it matters.
Since December, the Lyme community has been waiting to learn who will be appointed as…
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LYMEPOLICYWONK: Get your copy of the MyLymeData 2019 Chart Book
How many participants in the MyLymeData patient registry ever had a Lyme-related rash? (34%) How…
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LYMEPOLICYWONK: Patients want NIH to prioritize chronic Lyme research
This week, LymeDisease.org submitted comments on the proposed National Institutes of Health’s Tickborne Diseases Strategic…
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LYMEPOLICYWONK: Take our survey on NIH’s Lyme disease strategic plan
The National Institutes of Health (NIH) has invited public feedback on its tick-borne disease research…
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LYMEPOLICYWONK: Why HIPAA privacy rules must not be eroded
When you walk into a doctor’s office these days, you’re handed a sheaf of papers…
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LYMEPOLICYWONK: New blog helps interpret MyLymeData
The MyLymeData project has been in operation for more than three years now. With more…
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LYMEPOLICYWONK: Abandon “Post-Treatment Lyme Disease Syndrome” label
On December 3, I gave oral comments to the federal Tick-borne Disease Working Group. I…
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LYMEPOLICYWONK: Using MyLymeData to Build a Research Engine
Yesterday, I was honored to speak at the US Department of Health and Human Services’…
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LYMEPOLICYWONK: The problem of misdiagnosis in Lyme disease
My presentation to the Society to Improve Diagnosis in Medicine. On November 3, I was…
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LYMEPOLICYWONK: “Chronic Lyme disease” remains a contentious term
“Chronic Lyme disease” is a term that still generates controversy in the medical world. I…
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