IDSA Lyme guidelines removed from NGC; ILADS guidelines still there
The National Guidelines Clearinghouse–a federal database that provides treatment information to health care professionals and…
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LYMEPOLICYWONK: Zika, Ebola, and Lyme—What Do They Have in Common?
I don’t know about you, but I have watched wide-eyed and breathless as the Centers…
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2500 people have enrolled in MyLymeData. Have you?
Nobody knows the exact number of people in the US who have chronic Lyme disease….
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LYMEPOLICYWONK: The White House, citizen science, big data and Lyme disease
I was honored to participate in the White House Citizen Science forum this past week. …
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LYMEPOLICYWONK: My speech at MedX on Lyme disease and patient-centered big data research
This past weekend, I was honored to speak at the Stanford MedX conference and I…
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LYMEPOLICYWONK: ILADS Lyme guidelines on National Clearinghouse!
Lyme treatment guidelines developed by the International Lyme and Associated Diseases Society (ILADS) were…
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LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme
Next week, I will be honored to speak at the Stanford MedX conference on Patient Powered…
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LYMEPOLICYWONK: Growing Number Of Chronic Lyme Patients—Still No Government Action Plan?
Have you ever wondered how many people have chronic Lyme disease? The NIH estimates between…
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LymePolicyWonk: Delayed diagnosis of Lyme disease has devastating effect on patients
According to a nationwide survey by LymeDisease.org, only 7% of chronic Lyme patients are diagnosed and treated within critical thirty-day window essential to cure. More than half wait two years or more for correct diagnosis.
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I add my thoughts to AEON Lyme disease discussion; you can too
Pam Weintraub asks an important question over at Aeon discussion board: Why do doctors keep fighting about Lyme disease? Dr. Elizabeth Maloney kicked off with opening thoughts, Pam Weintraub joined in, Dr. Sheila Statlender and Dr. Lee as well as many patient voices have created a lively debate. Is you haven’t contributed yet, I encourage you to do so.
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