This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
A Pennsylvania school district is making life even more difficult for a light-sensitive Lyme patient. Family therapist Sandy Berenbaum, who specializes in helping Lyme families deal with the school system, offers her perspective.
Any light brighter than a cell phone's glow causes seizures for this teenager with Lyme disease. Yet she wants a graduation photo in the school yearbook. Unfortunately, school officials won't allow the inventive solution she devised.
What to do about schooling is one of the most frustrating challenges facing families of children with Lyme disease.
Even if you don’t live in Connecticut and don’t know anybody in Connecticut, you probably know somebody who DOES know somebody in Connecticut. We need to find those people–pronto.
(Book review) Improving diet may be one of the most important steps a Lyme patient can take on the road back to health.
"Spirochick Alix" blogs about Dr. Dave Martz's presentation at CALDA's recent Lyme patient conference. Hearing how he overcame ALS touched her especially, because her father died of ALS the same year Dr. Martz was diagnosed with it.
Dr. Raphael Stricker will discuss important research projects which offer hope to those with tick-borne diseases, at CALDA's upcoming Lyme patients' conference.
Dr. Christine Green will discuss "The Many Faces of Lyme Disease" at CALDA's upcoming April 24 patients' conference GETTING HEALTHY AGAIN IN 2010.
Actor Ben Stiller discussed his knee problems and the fact that he hoped it was Lyme disease (since he seems to think that’s a minor problem) on the David Letterman show. Letterman and he also both agreed that Lyme wasn’t a California problem, just an “east coast thing.”
To a teenager mired in the muck of an all-encompassing chronic illness, the promise of a better life at some distant point in the future can seem impossibly remote.
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