Lyme Blog Posts
10 years of headaches, vertigo and other pains dismissed as “depression”
By Rhisa Parera I was born in Brooklyn in 1990, to a Puerto Rican mom and an Irish and Spanish dad. I was raised in…
Helping our child through Lyme disease shouldn’t be this hard
By Jessica Egan Our 11-year-old daughter Lucy had three tick-borne diseases starting in 2018: Lyme disease, babesiosis, and mycoplasma pneumonia. We don’t know when or…
How stomach massage for gastroparesis can get things moving again
August is Gastroparesis Awareness Month. The disorder affects stomach muscles, making it difficult for the body to process food. There can be many causes for…
TOUCHED BY LYME: “Axel and the True Story of an Imaginary Illness”
Dorothée Lorang, a filmmaker who lives in Nantes, France, has two children. One of them, Axel, is the central character in a remarkable video called…
40+ practitioners failed to recognize Lyme disease as root of my ailments
By Gabriela Wijegunawardena Over the past seven years I’ve seen: five primary care doctors, two neurologists, five OB-GYNs, one gastroenterologist, two urologists, one allergist, five…
TOUCHED BY LYME: House approves increased funding for Lyme disease
The House of Representatives today approved a package of spending bills that includes $20 million in Lyme disease funding for the Centers for Disease Control…
TOUCHED BY LYME: Lasting musical tribute to Neil Spector’s legacy
Dana Parish is a singer, songwriter, and author who, along the way, has also turned into a major advocate for Lyme disease patients. In 2014,…
LYME SCI: Remembering the gifts of Dr. Neil Spector
Dr. Neil Spector, an internationally acclaimed cancer researcher, wanted to change the world. While seeking a cure for cancer, however, he became seriously involved with…
TOUCHED BY LYME: Real-world patient data can help find a cure
I wrote the following article, which appeared in the July 2020 issue of the “Townsend Letter: The Examiner of Alternative Medicine.” MyLymeData is a patient…
TOUCHED BY LYME: Townsend Letter focuses on Lyme, mold, & COVID
Townsend Letter, the Examiner of Alternative Medicine, is a print magazine that’s been around for 37 years. It focuses on alternative medical treatments and the…
LYME SCI: How many “negative” Lyme tests are due to B. miyamotoi?
Do you have all the symptoms of Lyme disease but test negative? Besides the fact the standard test for Lyme misses half the cases, there…
TOUCHED BY LYME: Working Group cuts public comment in half. Why?
I emailed the following message to the federal Tick-Borne Disease Working Group today. To the TBDWG and staff: As one of the foremost Lyme patient…