Lyme Blog Posts
TOUCHED BY LYME: Walker & Shapiro fail to change report’s Chapter 7
The federal Tick-Borne Disease Working Group held another online meeting Tuesday. Its upcoming Report to Congress continues to inch towards completion. At this stage of…
LYME SCI: Feds adopt “national strategy” for vector-borne diseases
The Kay Hagan Tick Act, passed in 2019, called for the US Department of Health and Human Services (HHS) to develop a national strategy to…
TOUCHED BY LYME: Will Working Group acknowledge patient voices?
Prior to this past Tuesday, the last time the public tuned in for an online meeting of the Tick-Borne Disease Working Group was July 8….
Tuttle directs pointed questions to TBD Working Group member Shapiro
Carl Tuttle, a long-time Lyme activist from New Hampshire, gave the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15. This…
Erin Walker: “We need tests, treatment, and recognition that Lyme is real”
Erin Walker delivered the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15, 2020. My name is Erin Walker and I…
COVID-19 Impact on Lyme Patients: Survey Results through September 10, 2020
COVID-19 has disrupted life throughout the world for half a year now. In May, MyLymeData launched our COVID-19 Impact Survey to learn how the pandemic…
LYME SCI: Intersection of Lyme and COVID, plus honoring Neil Spector
I just ‘attended’ the 2020 International Lyme and Associated Disease Society (ILADS) 21st Annual Scientific Conference entitled: “One Health Lyme: The Intersection of Lyme and…
Lyme has devastated my family–physically, financially, and emotionally
The following was submitted as a written public comment to the federal Tick-Borne Disease Working Group. By Monica White I am writing today as an…
LYME SCI: What smells like citrus and protects you from ticks?
As many of us have discovered during the COVID pandemic shutdown, living like a hermit is no fun. Yet, as we venture outdoors for a…
Video tribute to Dr. Neil Spector, Lyme hero, with music by Dana Parish
Lyme advocate Savannah Marcum has compiled the following video tribute to Dr. Neil Spector, with background music by Dana Parish. (Parish wrote the song based…
After the devastation of Lyme disease, a family finds healing
by Anna Penenberg Lyme disease can devastate families and spin your whole world upside down. I know that is the case for my family. Before…
TOUCHED BY LYME: Can we cure Lyme disease…or what?
The following question from somebody named Tom showed up in my inbox today: Do you know of a cure for Lyme disease or are we…