Lyme Blog Posts
“Lyme denial-itis” is pervasive. It stole my daughter’s childhood.
Janice Sutton gave the following remarks to the Tick-Borne Disease Working Group on October 27. As a critical care nurse for over a decade, I…
A simple, quick and cost-free fix–ditch the misleading Lyme map
Phyllis Mervine delivered the following verbal comments to the Tick-Borne Disease Working Group on October 27. My name is Phyllis Mervine. I’m the President and…
TOUCHED BY LYME: What’s true Lyme patient representation?
I delivered the following public comments by phone to the federal Tick-Borne Disease Working Group on October 27. I’m Dorothy Leland, vice president of LymeDisease.org,…
TOUCHED BY LYME: Why what’s on a death certificate matters so much
Carl Hamrin was born in Sweden, emigrated to the United States, and became a US citizen. His family settled in Maine, where he worked in…
TOUCHED BY LYME: Launching a “moonshot” to cure Lyme by 2030
The Center for Lyme Action (CLA), a nonprofit organization dedicated to increasing federal funding for Lyme disease research, today outlined a strategy to eliminate Lyme…
TOUCHED BY LYME: My conversation with “Lyme Time Podcast with Ali”
Alicia White suffered from bizarre, often painful physical symptoms for years. Consulting numerous doctors, the Southern California resident received many conflicting test results and (mis)diagnoses,…
“Gaslighting” by some doctors can undermine the chronically ill
By Carolyn Degnan One of the biggest problems that chronically ill patients face is “gaslighting” from their physicians/practitioners. I’ve been familiar with that term when…
TOUCHED BY LYME: Legislative update and a Lyme “moonshot”
Bonnie Crater, co-founder of the Center for Lyme Action–a lobbying group seeking more federal funding for Lyme disease–gave a legislative update at the recent LymeMIND…
Are antibiotics useful for treating chronic Lyme disease patients? MyLymeData study provides some answers.
One of the questions we have sought to answer through our MyLymeData patient registry: Why do some people improve substantially with antibiotic treatment, while others…
LYME SCI: 12 ways you can help yourself manage chronic pain
Chronic pain–defined as ongoing pain that continues for longer than six months–is a common complaint of patients with persistent Lyme disease. The CDC estimates that…
Would my son have his Lyme diagnosis without my mother’s instinct?
by Arlene Brailey For eight years, my son has been fighting a war against Lyme disease, with me alongside him. I have endured countless sleepless…
TOUCHED BY LYME: Resources to get you going in the right direction
LymeDisease.org is one of the foremost Lyme patient advocacy organizations in the United States. We provide a wealth of information on our website–about ticks, Lyme…