Lyme Blog Posts
LYME SCI: Don’t medically abandon people with neurological Lyme
I sent the following written comments to the Tick-Borne Disease Working Group before its last meeting on December 2. I’d like to thank the Tick-Borne…
TOUCHED BY LYME: Working Group holds final meeting. What’s next?
The final meeting of the 2019-2020 Tick-Borne Disease Working Group was held online December 2. The panel’s report should be on its way to Congress…
LYMEPOLICYWONK: 10 things you should know about new IDSA guidelines
The Infectious Diseases Society of America (IDSA) just released its new Lyme guidelines. They are 48 pages long and will take time to digest, but…
Denying Lyme treatment is “deeply institutionalized discrimination”
Holly Ahern gave the following remarks by telephone to the Tick-Borne Disease Working Group’s December 2 meeting. Based on the proceedings of this Tick-borne Disease…
Leveraging the wealth of available data to help Lyme patients recover
Mira Shapiro delivered the following public comment by telephone to the Tick-Borne Disease Working Group on December 2. My name is Mira Shapiro. I am…
Let’s arm our children with powerful “One Health” knowledge
Amy LeBoeuf delivered the following remarks by telephone to the Tick-Borne Disease Working Group on December 2. My name is Amy LeBoeuf, and I would…
LYMEPOLICYWONK: When decisions are foregone conclusions
I gave the following remarks by telephone at the December 2 meeting of the Tick-Borne Disease Working Group. Good morning. I’m Lorraine Johnson, the CEO…
Unethical to withhold viable Lyme treatments, while awaiting more research
Julia Wagner delivered the following public comment by telephone to the federal Tick-Borne Disease Working Group on December 2. Good morning. I am Julia Wagner,…
Deaf woman with Lyme: “No time for anyone who does not believe me”
By Laurie Lett I have been deaf from birth. I use my hands for communication purposes – sign language and writing. My hands are my…
Looking back on her teen years of Lyme-related pain. Life’s better now!
By Resiliently Rachel I sit in my wheelchair at the front office of my junior high. Tears sting my eyes as I explain to the…
TOUCHED BY LYME: Jane Barrows keeps fighting for Lyme patients in RI
Jane Barrows, founder of a Lyme support group in Newport, Rhode Island, has been named the “Citizen of the Year” in her region. The recognition…
Patients can respond very differently to disulfiram. Be cautious.
by Daniel A. Kinderlehrer MD Linda was 47 years old in 1990, when she became ill after visiting a park in Florida. Her “mystery illness”…