Connecting with other "teen Lyme-a-beans"
Guest blogger Cassidy Colbert talks about why teens with Lyme disease need the support of others in the same boat.
Author | LymeDisease.org
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The FDA and Lyme Disease Testing—FDA is Listening, but Does it Matter?
In August last year, I blogged about new FDA guidance on laboratory developed tests and how these might restrict access to diagnosis and care for Lyme patients. Many patients with Lyme disease rely on laboratory developed tests, for example, the IGeneX western blot. Since that time, I have met with the FDA twice and LymeDisease.org conducted a survey which drew close to 8,000 responses. The results of that survey were presented to the FDA in our meetings and by Dr. Elizabeth Maloney at the FDA public hearing in January. On January 29th, LDo submitted official public comments to the FDA proposal.
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Mother's "Lyme rage" over child's illness propels her to seek answers
(Book review) Lyme Rage: A Mother’s Struggle to Save Her Daughter from Lyme Disease, by Mindy Haber.
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TOUCHED BY LYME: CDC fires another salvo against "chronic Lyme"
Latest scare tactic warns that chronic Lyme diagnosis can lead to “permanent damage or death.”
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TOUCHED BY LYME: Rising musical star gives Dec. 4 “Stageit” concert for Lyme
Kêta’s own experience with Lyme disease inspires her music and her desire to help others in the same boat.
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Thanksgiving in the Lyme world, 2014
Along with new and continuing challenges for the Lyme community, there is also much to be grateful for this Thanksgiving season.
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Helping chronically ill kids dig deep for healing
(Book review) Digging Deep: A Journal for Young People Facing Health Challenges.
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Another Lyme voice falls silent
Guest blogger Sandi Bohle offers this appreciation for the legacy of Leslie Feinberg, who died this week from complications of Lyme disease.
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TOUCHED BY LYME: Finding what it takes to keep you functional
Asks guest blogger Jennifer Crystal: Would life be easier if I didn’t take so much medication?
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Send Willy Burgdorfer a message of gratitude
Willy Burgdorfer, the discoverer and namesake of the spirochete that causes Lyme disease (Borrelia burgdorferi), has entered hospice care.
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