NEWS: New ILADS Lyme guidelines promote options and informed choice
LymeDisease.org has endorsed the new Lyme disease guidelines published by ILADS, calling them “both evidence-based and patient-centered.”
Author | LymeDisease.org
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"Lyme? At least it isn’t cancer"
Guest blogger Emily Reach White writes that one of the hardest things about Lyme disease is the reaction of other people.
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Dr. Jones called both Great Satan and Mother Theresa
The following guest blog is excerpted from a lengthy interview with Lyme pediatrician Dr. Charles Ray Jones on the Lyme Connection website. In this section, Dr. Jones discusses how 20 years of harassment by medical authorities almost got him to give up treating children for Lyme–and what prompted him to keep at it.
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Jesse Colin Young “got brain back” after Lyme treatment
The singer/songwriter/founding member of the band “The Youngbloods” talks about his experience with Lyme disease.
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HARD SCIENCE ON LYME: Are FDA-approved tests better or worse?
The FDA gave its blessing to Lyme tests that miss as many as half the cases or more. The CDC thinks this should be good enough for patients. But patients insist on tests with better sensitivity from specialty labs in spite of having to pay out of pocket. Why is the government trying to prevent them from using all the tools in the arsenal when failure to diagnose has profound, life-altering consequences?
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New Lyme book offers "science plus compassion"
Review of “Compendium of Tick-Borne Disease: A Thousand Pearls.”
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THE LYME TIMES: A Feeling for the Organism
“Had we listened to our pediatrician and the local Lyme disease expert, we might have stuffed him full of psychoactive medications unable to address the disease. It would have been tantamount to locking him up and throwing away the key,” Elizabeth Stone said. Luckily they found Dr. Jones and her 16-year old son made a near-miraculous recovery.
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“Not your average illness memoir”? That’s an understatement.
Book review of “lyme light: a memoir” by Natalie London.
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THE LYME TIMES: 25 years of tick-borne disease advocacy
Twenty-five years ago, with a handful of volunteers, Phyllis Mervine launched what became LymeDisease.org. Our first issue of The Lyme Times was two legal-sized pieces of paper photocopied and stapled together. This anniversary issue looks at the early years of Lyme advocacy–the pioneers and the denialists–and the grassroots efforts that have brought us to this point.
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TOUCHED BY LYME: How does your chronically ill child or teen spend the day?
Many youngsters with chronic Lyme fill their time taking medicine and watching TV. But some find other ways to broaden their horizons.
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