TOUCHED BY LYME: One woman’s story of healing from chronic Lyme
Guest blogger Erika Arens writes about her eight-year journey with tick-borne illness.
Author | LymeDisease.org
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LYMEPOLICYWONK: The CDC, the FDA and Lyme Disease Lab Tests
Yesterday, the CDC officially announced that it “recommends that laboratory tests cleared or approved by FDA be used to aid in the routine diagnosis of Lyme disease.” This is a shame. Waiting for FDA approval suppresses innovation in Lyme testing and furthers the interests of those who have vested interests in the current flawed lab tests which miss as many cases as they detect. Neither of these is good for patients.
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TOUCHED BY LYME: When Lyme disease steals your voice—literally
Guest blogger Caroline Trujillo shares her experience with Lyme-induced aphasia.
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Known tick bite, no symptoms, what to do?
A concerned grandfather and I exchange emails.
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NEWS: Largest survey of chronic Lyme finds high disability, unemployment, medical costs
LymeDisease.org asked chronic Lyme patients the same “quality of life” questions the CDC asks about other chronic diseases. Nobody had ever done that before.
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TOUCHED BY LYME: Understanding Lyme disease through art
The organizers of this juried show hope to start a dialogue about Lyme disease through art.
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TOUCHED BY LYME: Lyme disease on the Appalachian Trail
Guest blogger Karl Ford collected infected ticks while hiking the Appalachian Trail, but kept himself tick-free. “I wore permethrin-treated bug-net pants, a treated long-sleeved shirt and hat and had no ticks on my body at any time during the 140-day hike.”
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TOUCHED BY LYME: Let Justina go home with her parents—now!
The next step in the chilling story of Justina Pelletier is a court hearing in Boston on March 17.
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HARD SCIENCE ON LYME: Another journalist with only half the story
Michael Kruse says he thinks people “should be looking at all of the evidence, not just the few studies that agree with an opinion that moves us emotionally.” Then he bases his argument on evidence that agrees with an opinion that moves him emotionally.
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TOUCHED BY LYME: How the “pain scale” inflicts even more pain on children
Children with Lyme disease experience many different kinds of pain, which don’t always fit neatly into categories on a medical chart.
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