Author | LymeDisease.org
It took four years of warnings from advocacy groups, physicians, and scientists (including the lead investigator), pleas and protests to the FDA, hundreds of adverse events and a class action lawsuit to get rid of the first ill-conceived Lyme vaccine. Will we have to get rid of the new one, too?
The illness damages more than your body. It can also demolish your bank account.
A new documentary explores the life and times of former “riot grrrl” Kathleen Hanna.
Online groups are valuable tools for people with Lyme. But there’s something about face-to-face connections that just can’t be beat.
A teenager with Lyme seeks answers on the internet, while knitting scarves to pay for medical treatment.
Lyme disease in the public eye–have we reached a tipping point?
Along with new and continuing challenges for the Lyme community, there is also much to be grateful for. Here’s our Thanksgiving gratitude list.
This guest blogger, who prefers to remain anonymous, outlines what she went through to obtain disability for Lyme disease.
Yesterday, patient advocates testified before the Joint Committee on Financial Services for a bill (H. 989) that would require insurance companies to cover antibiotic treatment for Lyme as prescribed by a physician. LymeDisease.org submitted a chart book as testimony. Drawing on our survey results and a key cost of illness study by Dr. Zhang of the Centers for Disease Control and Prevention, our submission tells the story of how medical costs by insurers have been cut 75% while costs borne by patients, their families, society, and public governments for loss of productivity have increased 200%.
When the CDC increased its surveillance numbers from 30,000 to 300,000, they said the increased case numbers meant we needed to do more about prevention and their emphasis is on avoiding the tick bite. But is prevention in the form of tucking your pants in on the hike, enough? Not by a long shot.
End of content
End of content
