Thanksgiving in the Lyme World, 2013
Along with new and continuing challenges for the Lyme community, there is also much to be grateful for. Here’s our Thanksgiving gratitude list.
Author | LymeDisease.org
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TOUCHED BY LYME: Her disability benefits for Lyme finally came through
This guest blogger, who prefers to remain anonymous, outlines what she went through to obtain disability for Lyme disease.
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LYMEPOLICYWONK: MA insurance bill hearing–how insurers cut costs at the expense of patients
Yesterday, patient advocates testified before the Joint Committee on Financial Services for a bill (H. 989) that would require insurance companies to cover antibiotic treatment for Lyme as prescribed by a physician. LymeDisease.org submitted a chart book as testimony. Drawing on our survey results and a key cost of illness study by Dr. Zhang of the Centers for Disease Control and Prevention, our submission tells the story of how medical costs by insurers have been cut 75% while costs borne by patients, their families, society, and public governments for loss of productivity have increased 200%.
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LYMEPOLICYWONK: Is an ounce of prevention worth a pound of cure? Or is it too little too late for those who are sick today?
When the CDC increased its surveillance numbers from 30,000 to 300,000, they said the increased case numbers meant we needed to do more about prevention and their emphasis is on avoiding the tick bite. But is prevention in the form of tucking your pants in on the hike, enough? Not by a long shot.
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LYMEPOLICYWONK: Annual Lyme costs now top $3.1 billion—It’s time to wake up!
The CDC is likely to officially update its cost estimates for Lyme disease based on the new case numbers, but in the meantime, I’ve pulled together some rough estimates. The annual cost of Lyme disease in the US in 2002 was estimated at $203 million by Dr. Zhang of the CDC. Today the annual cost is likely to exceed $3.1 Billion. The increased cost reflects the CDC revision of case numbers from 30,000 to 300,000 and adjustments for inflation. The average cost of Lyme disease in 2002 was $8,712, which would be $10,343 in today’s dollars. According to Zhang’s study, the later we intervene with the disease, the higher the costs. In today’s dollars the societal cost of Lyme when addressed at tick bite is $400. If we wait until early Lyme disease, the cost increases 4-fold to $1,658. By the time, we are dealing with late Lyme, the cost is through the roof– $20,502.
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TOUCHED BY LYME: Microscope you helped buy is now on the job
With the help of people like you, LymeDisease.org raised $150,000 to support the important work of Lyme researcher Dr. Eva Sapi.
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TOUCHED BY LYME: Horowitz, Sapi, & live TV highlight San Diego Lymewalk
Lyme survivors, advocates, and high profile speakers converged on this year’s event on Oct. 19.
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LYMEPOLICYWONK: Students at risk for Lyme: Will lawsuits make a difference?
Two new Lyme cases should make school and summer camp officials more vigilant about preventing tick-borne illnesses in students. The fact is that the threat of a law suit can motivate needed change. I remember how difficult it was to get schools to take rape seriously. For years, people complained and nothing happened. Then lawsuits were filed and campuses woke up. They started educating students about rape risks and precautions, installing more lights, making guards available to walk students to their cars late at night and so forth. Parents and students would welcome that type of sea-change in Lyme disease prevention.
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TOUCHED BY LYME: How iphones can mess with your head
Guest blogger Jennifer Crystal found “whooshing and zooming” of iOS7 a challenge to navigate.
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BOOK REVIEW: “Why Can’t I get Better? Solving the Mystery of Lyme and Chronic Disease”
Dr. Richard Horowitz’s new book looks at pain, fatigue, memory and concentration problems, sleep disorders and much much more.
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