TOUCHED BY LYME: Lyme Disease Rocked Our Family
An off-hand question from a neighbor was eerily prophetic.
Author | LymeDisease.org
-
-
Germany Says No to IDSA Lyme Guidelines
The German Society of Lyme Borreliosis submitted its objections to the IDSA Lyme disease review panel. The society protested the application of the IDSA guidelines in Germany, emphasizing the poor lab test sensitivity, persistence of the organism, and seriousness of the illness.
-
The UK Says No to IDSA Lyme Guidelines
Lyme Disease Action (in the UK) filed a submission with the IDSA contesting the IDSA 2006 Lyme disease guidelines. The submission points out that the presentation of Lyme disease in the UK may be different than the presentation in the US, and the application of the guidelines in the UK lead to under-diagnosis and under-treatment of patients with Lyme disease.
-
The spectacular, spectacular–The Association of American Physicians and Surgeons (AAPS) takes IDSA to task
The Association of American Physicians and Surgeons (AAPS), which represents physicians and surgeons in small practices, sets the IDSA Lyme disease guidelines in its cross-hairs. Why? Because the physicians need flexibility and the IDSA guidelines are mandates that restrict the ability of physicians to provide individualized care. The full text of the AAPS letter to the IDSA follows:
-
At the Gala
Every now and then you gotta kick up your heels. This year I headed back east for Time for Lyme's GALA. The Young People's Chorus of New York City gave an amazing performance of internationally inspired songs. Actor, Director and Writer Lou Diamond Phillips of Lyme Life gave a compelling speech and a rousing performance singing with the band–including the song LA BAMBA–which had everyone up dancing. The picture is me leaning in to talk with Dr. Luc Montagnier, a Nobel Prize winner for his discovery of HIV, who was honored at the GALA.
-
ILADS Submits
Pop the cork off the Champagne and let the fireworks rip! ILADS made its document submission for the IDSA Lyme disease review panel. And the weight of evidence was staggering–
-
Panel stacking: It’s not magic. It’s deception
The IDSA trots out bad faith move after bad faith move to ensure that their Lyme disease guidelines are rubberstamped quickly and quietly. IDSA took first things first–which means stacking the panel has been front and center in its cross-hairs for some time.
-
Patients know enough medicine to smell a rat
Most guidelines panels are heavily populated by academics. Why is that? Take the IDSA guidelines Lyme disease panel in 2006—all academic researchers. Researchers are good at science, but what about medicine? Does good science make good medicine? Not necessarily.
-
TOUCHED BY LYME: Kids need to feel safe and protected, and so do their families (Guest blog by Sandy Berenbaum)
When I started my psychotherapy practice 22 years ago, specializing in adolescents and families, I recognized that, as a mother and as a psychotherapist, the core of my philosophy about children is that they need to feel safe and protected. Actually they need to be safe and protected. Four years later, when I started seeing children and adolescents with Lyme disease (one year after my own diagnosis), I realized that, in the world of Lyme, many patients do not feel safe and protected.
-
TOUCHED BY LYME: When a medical problem calls for non-medical help
I recently received a phone call from a mom whose two teen-aged sons are terribly ill with Lyme and coinfections. In addition to all the medical and emotional issues her family is dealing with, she’s also concerned about schooling, since one of her sons is too sick even for homebound instruction.
End of content
End of content