LymeSci Blog
Lonnie Marcum
is a Physical Therapist, with a dual degree in health administration and physical therapy. She has a passion for helping people heal from illness and injury by treating the whole body. She became active in the Lyme community after her daughter was diagnosed with tick-borne diseases in 2013. She now devotes much time to learning about Lyme and related conditions, and sharing that knowledge via social media. In addition, she has served as a member of the HHS Tick-Borne Disease Working Group: Tick Biology, Ecology, Control Subcommittee. Her blog, LymeSci, seeks to help patients understand the science of tick-borne diseases and new developments in research.
TOUCHED BY LYME: Compelling Lyme memoir now an audio book
In May 2014, I reviewed lyme light: a memoir, by Natalie London. It’s now available as an audio book, narrated by Natasha Lyonne from the Netflix series…
Latest issue of The Lyme Times explains MyLymeData
LymeDisease.org will soon launch a patient-powered research project called MyLymeData. It promises to be the largest study of chronic Lyme patients ever. Our latest issue of…
TOUCHED BY LYME: Being your own superhero
Last month, at the IDSA Lyme protest in San Diego, I met Michelle Trostler, who was dressed like Wonder Woman. When I asked why, she…
TOUCHED BY LYME: Yes, the IDSA noticed us in San Diego
A valiant group of Lyme activists braved a record-breaking heat wave in San Diego Oct. 9-10 to protest outside the Infectious Diseases Society of America’s…
Mobile billboard circling IDSA conference in San Diego
When the Infectious Diseases Society of America opened its annual conference in San Diego yesterday, attendees were greeted with the sight of a mobile billboard…
LYMEPOLICYWONK: The White House, citizen science, big data and Lyme disease
I was honored to participate in the White House Citizen Science forum this past week. Citizen science is where ordinary people participate in science by…
Lorraine Johnson invited to White House citizen science forum
LymeDisease.org CEO Lorraine Johnson has been selected to participate in a White House forum hosted by the White House Office of Science and Technology Policy and Domestic…
TOUCHED BY LYME: “Most serious undiagnosed health threat in existence”
Many people think that if they had tons of money in the bank, their problems would be solved. However, UK billionaire John Caudwell has found…
TOUCHED BY LYME: Lyme cyclist to reach Pacific October 3
In May 2011, Logan McCulloch of Kentucky was hiking with his son in Mammoth Cave National Park, when he was bitten by more than 20…
LYMEPOLICYWONK: My speech at MedX on Lyme disease and patient-centered big data research
This past weekend, I was honored to speak at the Stanford MedX conference and I will post a video of the speech on our website…
TOUCHED BY LYME: Lyme Quilt coming to San Diego protest
A couple of years ago, a Lyme patient named Tami Griffith felt inspired to create a special quilt in honor of the Lyme community….
LYMEPOLICYWONK: ILADS Lyme guidelines on National Clearinghouse!
Lyme treatment guidelines developed by the International Lyme and Associated Diseases Society (ILADS) were posted today on the National Guideline Clearinghouse (NGC). They are…