LymeSci Blog
Lonnie Marcum
is a Physical Therapist, with a dual degree in health administration and physical therapy. She has a passion for helping people heal from illness and injury by treating the whole body. She became active in the Lyme community after her daughter was diagnosed with tick-borne diseases in 2013. She now devotes much time to learning about Lyme and related conditions, and sharing that knowledge via social media. In addition, she has served as a member of the HHS Tick-Borne Disease Working Group: Tick Biology, Ecology, Control Subcommittee. Her blog, LymeSci, seeks to help patients understand the science of tick-borne diseases and new developments in research.
LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme
Next week, I will be honored to speak at the Stanford MedX conference on Patient Powered Research and Big Data. You can watch it streaming live if…
When Your Child Has Lyme disease: A Parent’s Survival Guide
For the past several years, I’ve been collaborating with psychotherapist Sandy Berenbaum on a book entitled When Your Child Has Lyme Disease: A Parent’s Survival…
Suffering the Silence: Chronic Lyme Disease in an Age of Denial
When Allie Cashel, now 23, was a young child, her father was diagnosed with Lyme disease. Later, when she was seven, she and her three…
TOUCHED BY LYME: Six apps to simplify life with Lyme
By guest blogger Rachel As someone with 10 years of experience as a chronically ill person, I’ve come to learn that phone apps can be…
TOUCHED BY LYME: My letter published in San Francisco Chronicle
The San Francisco Chronicle gave great coverage to Stanford’s recent study showing a high prevalence of infected ticks in the Bay Area. However, I felt…
TOUCHED BY LYME: Letter to her pre-illness self
by guest blogger Paula Jackson Jones I wrote this letter last year, when I went into remission from my six-year battle with late stage neurological…
TOUCHED BY LYME: Sometimes “tick panic” is a good thing
The headline caught my eye immediately: Five reasons to not totally panic about ticks and Lyme disease. The publication: Science News—Magazine for the Society of…
TOUCHED BY LYME: CDC ups cases to 329,000; some docs push back
The Centers for Disease Control and Prevention (CDC) now says there are about 329,000 cases of Lyme disease in the US every year. That’s up…
TOUCHED BY LYME: Protesting IDSA in San Diego, Oct. 9-10
In early October, the Infectious Diseases Society of America (IDSA)—you know, the Lyme denialists, the ones who insist chronic Lyme doesn’t exist, who make it…
The basics about protecting yourself from ticks
Ticks can be found in different kinds of terrain, at different times of the year, in different kinds of weather. They come in different sizes….
LYMEPOLICYWONK: Growing Number Of Chronic Lyme Patients—Still No Government Action Plan?
Have you ever wondered how many people have chronic Lyme disease? The NIH estimates between 10-20% of those who get Lyme develop persisting symptoms. Other…
“Managing” Lyme patients? How about treating them?
by Daniel J. Cameron, MD, MPH “Minds are like parachutes. They only function when open.” This particular quote by Thomas Dewar came to mind after…