LymeSci Blog
Lonnie Marcum
is a Physical Therapist, with a dual degree in health administration and physical therapy. She has a passion for helping people heal from illness and injury by treating the whole body. She became active in the Lyme community after her daughter was diagnosed with tick-borne diseases in 2013. She now devotes much time to learning about Lyme and related conditions, and sharing that knowledge via social media. In addition, she has served as a member of the HHS Tick-Borne Disease Working Group: Tick Biology, Ecology, Control Subcommittee. Her blog, LymeSci, seeks to help patients understand the science of tick-borne diseases and new developments in research.
LYMEPOLICYWONK: Chronic Lyme disease patients suffer high unemployment and disability
LymeDisease.org’s recently published survey found that patients with chronic Lyme disease reported low quality of life. They had more days that were bad physically…
LYMEPOLICYWONK: The Lyme Wars: Guidelines, Controversy and Informed Consent
I was recently asked to write an article for a law journal, Medical Legal Perspectives, regarding the importance of informed consent in the treatment of…
“Not your average illness memoir”? That’s an understatement.
Book review of “lyme light: a memoir” by Natalie London.
THE LYME TIMES: 25 years of tick-borne disease advocacy
Twenty-five years ago, with a handful of volunteers, Phyllis Mervine launched what became LymeDisease.org. Our first issue of The Lyme Times was two legal-sized pieces…
TOUCHED BY LYME: How does your chronically ill child or teen spend the day?
Many youngsters with chronic Lyme fill their time taking medicine and watching TV. But some find other ways to broaden their horizons.
TOUCHED BY LYME: One woman’s story of healing from chronic Lyme
Guest blogger Erika Arens writes about her eight-year journey with tick-borne illness.
LYMEPOLICYWONK: The CDC, the FDA and Lyme Disease Lab Tests
Yesterday, the CDC officially announced that it “recommends that laboratory tests cleared or approved by FDA be used to aid in the routine diagnosis of…
TOUCHED BY LYME: When Lyme disease steals your voice—literally
Guest blogger Caroline Trujillo shares her experience with Lyme-induced aphasia.
LYMEPOLICYWONK: How many of those with Lyme disease have the rash? Estimates range from 27-80%.
Have you ever wondered how many patients with Lyme disease have a rash? You would think the answer would be straight-forward. It’s not…
LYMEPOLICYWONK: Study Finds Coinfections in Lyme Disease Common
The largest survey of chronic Lyme disease patients was recently published in PeerJ. LymeDisease.org conducts these large-scale surveys to collect information directly from Lyme patients…
Known tick bite, no symptoms, what to do?
A concerned grandfather and I exchange emails.
NEWS: Largest survey of chronic Lyme finds high disability, unemployment, medical costs
LymeDisease.org asked chronic Lyme patients the same “quality of life” questions the CDC asks about other chronic diseases. Nobody had ever done that before.