LymeSci Blog
Lonnie Marcum
is a Physical Therapist, with a dual degree in health administration and physical therapy. She has a passion for helping people heal from illness and injury by treating the whole body. She became active in the Lyme community after her daughter was diagnosed with tick-borne diseases in 2013. She now devotes much time to learning about Lyme and related conditions, and sharing that knowledge via social media. In addition, she has served as a member of the HHS Tick-Borne Disease Working Group: Tick Biology, Ecology, Control Subcommittee. Her blog, LymeSci, seeks to help patients understand the science of tick-borne diseases and new developments in research.
TOUCHED BY LYME: Letter to Colby’s Grandpa tells greater Lyme story
Readers of this column recently learned about Colby Lenz, a remarkable San Francisco woman experiencing both severe neurological Lyme disease and a brain condition called…
TOUCHED BY LYME: After a 62-mile bike ride for Lyme research, she’ll be at SF Lymewalk Sept. 26
For over 10 years, Carol E. was too fatigued to ride a bicycle at all. Now, after Lyme treatment, she’s cycling—and walking—to increase public awareness,…
TOUCHED BY LYME: How the IOM is connected to the 2010 CALDA Lymewalks
I leave it to my blogging colleague, the Lyme Policy Wonk, to explain the disturbing details surrounding the Institute of Medicine's upcoming Lyme workshop. But…
LYMEPOLICYWONK: IOM Workshop–Who are They, What is It, When, Where, and Why Does it Matter?
Some of you have been following the IOM proceedings and know the background of the workshop. But I thought I would provide some background…
LYMEPOLICYWONK: IOM Workshop—Where Do I Draw the Line on Fairness?
I thought I might share with the community why I believe the IOM process is too one sided to further patient interests. I am…
LYMEPOLICYWONK: Lyme Patient Groups Withdraw from IOM Lyme Workshop
TFL, LDA, and CALDA, announced today that they are withdrawing from the IOM Lyme Workshop due to bias and the lack of balance in scientific…
LYMEPOLICYWONK: Speaking Truth to Power: Dr. Liegner Lays it Out for the IOM
Dr. Liegner has been in the trenches a long time treating Lyme disease. He was working side by side in the early days with…
TOUCHED BY LYME: Los Angeles Lymewalk is rallying point for “Team Ashlyn Levin”
Ashlyn Levin turns 20 this week, hospitalized since suffering cardiac arrest in July. It’s the latest chapter in a harrowing Lyme journey that started more…
TOUCHED BY LYME: (guest blog) Poppy seeds are much easier to spot than nymphal ticks
Phyllis Mervine, president and founder of the California Lyme Disease Association, recently felt a tickle on her neck…and found a nymphal tick. Knowing that nymphs…
LYMEPOLICYWONK: Spotlight on an IOM Speaker: Does the IOM Know the Difference Between Dogma and Science? Rumor Hassett They Don’t!
The IOM has slotted Afton Hassett to speak about “Potential Bio-Marker Applications for Lyme Disease: Aligning Multiple Symptoms with Biological Measures”. You might think…
LYMEPOLICYWONK: ILADS Weighs in on IOM Process
Today, ILADS sent a letter to the IOM expressing its concerns about the lack of balance in the panel and the speaker list for the…
LYMEPOLICYWONK: Institute of Medicine Cuts on the Bias for IDSA
Finally, the Institute of Medicine (IOM) came out with its agenda for their “State of the Science Hearing”after much hemming and hawing. Patient groups (including…