LymeSci Blog
Lonnie Marcum
is a Physical Therapist, with a dual degree in health administration and physical therapy. She has a passion for helping people heal from illness and injury by treating the whole body. She became active in the Lyme community after her daughter was diagnosed with tick-borne diseases in 2013. She now devotes much time to learning about Lyme and related conditions, and sharing that knowledge via social media. In addition, she has served as a member of the HHS Tick-Borne Disease Working Group: Tick Biology, Ecology, Control Subcommittee. Her blog, LymeSci, seeks to help patients understand the science of tick-borne diseases and new developments in research.
The FDA and Lyme Disease Testing—FDA is Listening, but Does it Matter?
In August last year, I blogged about new FDA guidance on laboratory developed tests and how these might restrict access to diagnosis and care for…
Mother's "Lyme rage" over child's illness propels her to seek answers
(Book review) Lyme Rage: A Mother’s Struggle to Save Her Daughter from Lyme Disease, by Mindy Haber.
TOUCHED BY LYME: CDC fires another salvo against "chronic Lyme"
Latest scare tactic warns that chronic Lyme diagnosis can lead to “permanent damage or death.”
LYMEPOLICYWONK: Two Standards of Care Revisited: Should Lyme Patients Have A Choice?
Lyme disease is a controversial illness—as anyone with the disease knows. The controversy arises because there is medical uncertainty about the best way to diagnose…
LYMEPOLICYWONK: LymeDisease.org responds to Slate’s “Lyme-Illiterate” article
In the final days waiting for Governor Cuomo to sign the Lyme bill in New York that would ensure Lyme patients access to diagnosis…
TOUCHED BY LYME: Rising musical star gives Dec. 4 “Stageit” concert for Lyme
Kêta’s own experience with Lyme disease inspires her music and her desire to help others in the same boat.
Thanksgiving in the Lyme world, 2014
Along with new and continuing challenges for the Lyme community, there is also much to be grateful for this Thanksgiving season.
Helping chronically ill kids dig deep for healing
(Book review) Digging Deep: A Journal for Young People Facing Health Challenges.
Another Lyme voice falls silent
Guest blogger Sandi Bohle offers this appreciation for the legacy of Leslie Feinberg, who died this week from complications of Lyme disease.
TOUCHED BY LYME: Finding what it takes to keep you functional
Asks guest blogger Jennifer Crystal: Would life be easier if I didn’t take so much medication?
Send Willy Burgdorfer a message of gratitude
Willy Burgdorfer, the discoverer and namesake of the spirochete that causes Lyme disease (Borrelia burgdorferi), has entered hospice care.
LYMEPOLICYWONK: FDA Proposed Regulation of Lyme Tests? Take the Survey!
LymeDisease.org has launched a new survey regarding the FDA’s proposed regulation of Lyme lab tests. We need your views on this very important topic…